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­­Working Together for Hawaii's ALS Community

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In the four years since The ALS Association Golden West Chapter welcomed the Aloha State into our service area, we have expanded local services and support.  Our exceptional Hawaii team, Terryn Davis, Regional Care Manager, and Kahala Howser, Regional Director of Community Outreach, have worked to increase access to resources, experts, information and support to Hawaii’s ALS community. The Golden West Chapter celebrated important milestones in 2016 made possible by the dedicated efforts of our volunteers and supporters in Hawaii:

A Historic Victory: The Launch of Multidisciplinary ALS Care

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The Golden West Chapter launched the first multidisciplinary ALS clinic on Oahu in February 2016. Dr. Brandon K. Hirota serves as the Clinic Director of Neurology Associates, a group of medical professionals providing high-quality care, support and information for people living with ALS and their caregivers. Research has shown that having access to multidisciplinary clinical care helps people with ALS live significantly longer and with better quality of life. In the fall of 2016, Kaiser Permanente Hawaii also opened a multidisciplinary ALS clinic under the direction of Dr. Todd Devere.

An Annual Tradition: Celebrating ALS Awareness Month

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In conjunction with annual ALS awareness efforts across the county, Governor David Ige has proclaimed May “ALS Awareness Month” in Hawaii for the past three years. In May 2016, many ALS awareness activities took place in Hawaii including special meetings with Mayors Bernard Carvalho and Billy Kenoi, and a special sunset memorial service honoring loved ones lost to the disease at the State Capitol in Honolulu.

Raising ALS Awareness: Community Outreach and Support

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Throughout 2016, the Chapter produced “Your ALS Connection,” a television series featured on Olelo Community Television Network that provides viewers with the opportunity to learn more about ALS, local resources, and related topics of interest. Chapter staff also hosted support groups and made many educational presentations to foster learning and awareness. Strong winds and friends came together for the Sailing for ALS crew in the 2016 Pacific Cup Race and at the 6th annual Joe Cochran Memorial Regatta at the Kaneohe Yacht Club.

Celebrating Community: The Hawaii Walk to Defeat ALS

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The annual Hawaii Walk to Defeat ALS continues to generate tremendous support for the ALS community. The Hawaii Walk has grown into a year-round community outreach opportunity beyond the day of the event.  Last year's Walk brought together over 600 walkers and 100 volunteers in our largest walk to date! You can view the pictures from all of the Hawaii Walks over the years on our Flickr channel.

2017 Events: