The Golden West Chapter of The ALS Association is dedicated to the fight against ALS in many ways - funding global research, supporting scientific and clinical collaboration, providing professional care management services to families facing ALS, partnering with multidisciplinary ALS clinics and centers, connecting people with ALS to clinical trials, increasing ALS awareness, driving important public policy initiatives, and bringing the ALS community together.
The Golden West Chapter’s compassionate Care Services team provides professional, expert advice and assistance for people living with ALS, free-of-charge. During the onset of COVID-19, the Chapter completely pivoted to provide comprehensive care services via online platforms. Our knowledgeable and dedicated Regional Care Managers are utilizing technology to help individuals and families access the most current and impactful information, resources, equipment, and experts to maintain and maximize health, for individuals living with ALS and their loved ones. Our online support groups throughout our service area have had a large increase in attendance, we are facilitating more loans of equipment and communication devices than ever before, and our ability to offer new educational webinars has allowed more Chapter clients and many outside our service area to learn from experts on a variety of topics of keen interest to the ALS community. Medical professionals from more than 27 multidisciplinary ALS specialty clinics and centers supported by the Chapter are now meeting regularly via Chapter hosted calls in order to share ideas and collaborate. Utilizing telehealth techniques, our proven model of robust, proactive, multidisciplinary care continues to help people live longer and better with ALS, while also advancing the search for treatments and cures.
Powering the world’s largest ALS research program, the Chapter supports The ALS Association active projects in more than 150 labs around the globe. From harnessing innovative ideas, to translating concepts to therapies – our collaborative and global approach to funding research drives the leading discoveries by top ALS scientists locally and around the world.
A nationwide network of dedicated volunteer ALS advocates work year-round to address legislative issues and secure funding to improve the lives of thousands of people with ALS and their families. Our efforts in California, Hawaii, and across the nation, inform and educate elected officials and the public about opportunities to facilitate access to services, accelerate drug development, and reduce barriers to care and research.
Each year, the Chapter hosts more than 30 memorable and spirited community outreach events, to provide people living with ALS and their families with the opportunity to gather, share, and enjoy themselves in a fun and casual setting. Our family-friendly activities – like our Walks to Defeat ALS, Rides to Defeat ALS, ALS Golf Classic, and other celebrations like our Champions for Cures and Care event – empower the ALS community and inspire our actions to create a world without ALS.
Your generous support fuels everything we do, and everything we do advances the search for effective treatments and a cure for ALS. The Golden West Chapter relies on the generosity of individuals, families, companies, and philanthropic organizations to make what we do possible. Each year since 2012, the ALS Association Golden West Chapter is proud to have earned a Four-Star rating from Charity Navigator, America’s largest independent charity evaluator! This is the highest rating possible in recognition of our ongoing commitment to sound fiscal management, accountability and transparency. Only 5% of the charitable organizations rated receive this exceptional distinction four or more years in a row.