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Golden West Chapter - In the News

Thank you for visiting our "In the News" section, a valuable resource for both the ALS community and media professionals.  For any media inquires, please contact us at or call our media hotline 415-967-2572.

Be sure to register to receive our monthly enewsletter and receive news updates and other highlights from the Golden West Chapter of The ALS Association. You can also subscribe to our many social media channels and networks.


This month "In the News," we highlight stories about members of our ALS community who are determined to help advance the search for effective treatments and cures and fundraise in support of people living with ALS and their loved ones.

  • Thank you to José Fajardo of Hawaii Public Radio for lending his voice to be an ALS advocate and raising awareness and support, while living with ALS. You can watch his incredible story here on our YouTube Channel!

  • The Golden West Chapter of The ALS Association is celebrating our ninth consecutive year earning a Four Star Charity rating from Charity Navigator! We are proud to be recognized for our ongoing commitment to sound fiscal management, accountability and transparency, and to be among the top 5% of rated charities nationwide who have received this exceptional distinction four or more years in a row. Read the announcement here.

  • Now and always, as a values-driven organization, the Golden West Chapter wholeheartedly rejects hate, racism, and social injustice of any kind. We realize that diversity and inclusivity are only the beginning, and have recently updated our public commitment to promote equal access to ALS treatments and services.


Spotlight on... Tom and Carolyn Reese
November 29, 2021

Spotlight on... Sue Morris
November 9, 2021

News Release: Golden West Chapter to Honor Amylyx Pharmeceuticals at 2021 Champions for Cures and Care
November 6, 2021

Spotlight On… Brittany Suzuki
October 11, 2021

Spotlight on... Caridad Paz
October 10, 2021

Spotlight On... Sara Nachlis
October 8, 2021

A Message From... Darrell Pakele
October 8. 2021

When Facing the Challenges of ALS, Community is Everything: An Open Letter from Charles Howlett
October 2, 2021

PREVIOUS HEADLINES (through 9/30/2021)

How a Car Show "Raced" New Support in the Fight to Defeat ALS: An Open Letter from Tom Galt
September 25, 2021

Q&A: How Amylyx NDA Announcement Moves the Fight for Access to AMX0035 Forward
September 20, 2021

ALS Association Applauds Amylyx's AMX0035 Announcement, Urges Swift FDA Approval
September 15, 2021

Cision PRWeb: Join the 17th Annual Napa Valley Ride to Defeat ALS and Walk on Saturday, September 18, 2021!
September 12, 2021

Spotlight On ... Art and Barb Pahr
September 4, 2021

New Potential Therapeutic Target Identified in CHMP7
August 31, 2021

The Mercury News: When Aid-In-Dying Means You Have to Go Before You’re Ready
August 29. 2021

Preparing for the Physical Impacts of an ALS Diagnosis
August 24, 2021

Researcher Spotlight: Nishal Shah, Ph.D.
August 17, 2021

What Is FTD and How Is It Connected to ALS?
August 10, 2021

KPIX CBS San Francisco Bay Area: A Dosage Of Hope: ALS Patients Fight For a Chance At Promising Therapies
August 10, 2021

Cytokinetics Announces Start of COURAGE-ALS, a Phase 3 Clinical Trial of Reldesemtiv in Patients With Amyotrophic Lateral Sclerosis
August 3, 2021

Discovery+: Celebrity IOU Joyride | Streaming Soon on discovery+
July 20, 2021

KPIX CBS San Francisco Bay Area: UCSF Researchers Help Paralyzed Man Translate Thoughts to Text
July 15, 2021

ESPN: The Inspiring Story of Oakland A's Outfielder Stephen Piscotty, a Cardboard Cutout and a Fan Living With ALS
July 4, 2021

Hike to Defeat ALS: Spotlight on Attilio Giolli
June 25, 2021

Community invited to free concert Rocking Out ALS on Thursday, June 24 to support the search for treatments and cures for ALS
June 22, 2021

The ALS Association: Our Response to the FDA’s Latest Letter and What We’re Doing to Keep Up the Pressure
June 22, 2021

The Stem Celllar: CIRM Board Approves New Clinical Trial for ALS
June 21, 2021

The ALS Association: Health Disparities and ALS
June 18, 2021

The ALS Association: ALS Association Wraps Up Virtual Advocacy Conference with Calls on Congress to Act
June 18, 2021

ALS News Today: Artist With ALS Finds Collaborator, Friend, to Paint Through Disease
June 18,2021

Hike to Defeat ALS: Spotlight on Jennifer Perez
June 18, 2021

Hike to Defeat ALS: Spotlight on Rachel Hensley
June 16, 2021

The New York Times: As M.L.B. Honors Lou Gehrig, It Shines a Spotlight on A.L.S.
June 3, 2021

The Athletic: You don’t take a moment for granted: Giants to recognize ALS awareness on Lou Gehrig Day
June 2, 2021

SF Chronicle: How Menlo Park's Kevin Heller helped create MLB's Lou Gehrig Day
June 1, 2021

Emma Picetti, Volunteer and ALS advocate: Every moment matters, always and forever
May 31, 2021

FOX 11: Ady Barkan's Fight for Healthcare Reform
May 28, 2021

William Speier, PhD, ALS Researcher: Every moment matters in advancing ALS research
May 21, 2021

Cytokinetics and The ALS Association Renew Partnership to Advance the Fight Against ALS
May 19, 2021

Dave L. Tran, MD: Every moment matters caring for the ALS community.
May 18, 2021

Youth Action Day: Every moment matters in inspiring youth to take action to fight ALS!
May 11, 2021

CBS News LA: ALS Awareness Month
May 5, 2021

Dawn and Niall Foley: Every moment matters in raising awareness and support for the ALS community.
May 4, 2021

Dr. Jan Veldink Receives 2021 Sheila Essey Award
Apr 23, 2021

The Golden West Chapter selected as a grant recipient from Tambourine
April 5, 2021

PALO ALTO WEEKLY: Heller family makes long journey to Sacred Heart Prep from M-A
April 4, 2021

The Mercury News: Los Gatos Man Says Nonprofit Work Lightens His Load in Battling ALS
March 14, 2021

Spotlight On: Stacy Title, Trailblazer in Hollywood and as an ALS Advocate
March 9, 2021

The ALS Association Golden West Chapter Receives a $30,000 Quality of Life Grant from Christopher & Dana Reeve Foundation for ALS Respite Care
March 5, 2021

MLB: Inaugural Lou Gehrig Day Set for June 2
March 4, 2021

Spotlight On: Leila Sulentic, Event Chair, Jim Tracy 5k to Defeat ALS
March 4, 2021

Kevin Heller Receives The ALS Association’s Hero Award
March 1, 2021

Today: 'Meant to be': Man Finds Loving Home for Senior Rescue Dog 3 Days Before Dying
February 10, 2021

Broadway World: All Star Virtual Comedy ALS Fundraiser Announced Next Weekend
February 8, 2021 Worldwide Good Deeds This Week to Mark 49th Birthday of Rabbi With ALS
February 8, 2021

NewsChannel 3-12: Santa Barbara Activists Host Car Caravan Demanding Guaranteed Health Care
February 6, 2021

Neurology Today: Black Patients with ALS Face Significant Diagnostic Delays, Large Study Confirms
February 4, 2021

The Hollywood Reporter: Stacy Title, 'The Bye Bye Man' and 'Down on the Waterfront' Filmmaker, Dies at 56
January 11, 2021

People: Rebecca Luker Died from ALS Complications, Says Husband: 'She Remained Positive and Kind Until the End
January 6, 2021

Heavy: This ‘Star Trek’ Cast Member is Dealing with ALS
January 6, 2021

CBS Los Angeles: Vin Scully’s Wife, Sandra Scully, Dies At 76 From ALS Complications
January 4, 2021

For other news and articles from last year, please visit our archives.