IMPORTANT UPDATE: The US Food and Drug Administration (FDA) announced the approval of Relyvrio (AMX0035) as a new treatment for ALS.
We know that there are a lot of questions that people have, in light of this exciting news. Please read some of the FAQs that the Golden West Chapter is fielding from our ALS community.
Please see some of the ways you can meaningfully participate to give help and hope to families facing ALS on Tuesday, November 29!
Please see some of the ways you can meaningfully participate to give help and hope to families facing ALS on Tuesday, November 29!
ASK ME: ALS from the Caregivers Perspective
In honor of National Family Caregivers Month, our next ASK ME educational webinar, “ALS from the Caregiver’s Perspective,”as we discuss ALS from the perspective of two women who each cared for a person living with ALS.
Panelists will include Mari Fuentes, who cared for her husband, filmmaker Anton Maillie, and Trish Rice, who cared for her son, writer and poet Ryan Farnsworth. We are grateful to both Mari and Trish, who continue to honor their loved ones by supporting our mission and the ALS community.
ASK ME: ALS from the Caregivers Perspective
In honor of National Family Caregivers Month, our next ASK ME educational webinar, “ALS from the Caregiver’s Perspective,” as we discuss ALS from the perspective of two women who each cared for a person living with ALS.
Panelists will include Mari Fuentes, who cared for her husband, filmmaker Anton Maillie, and Trish Rice, who cared for her son, writer and poet Ryan Farnsworth. We are grateful to both Mari and Trish, who continue to honor their loved ones by supporting our mission and the ALS community.
Calendar of Activities and Events
There is always something going on at the Golden West Chapter. Please check out our calendar to see what is happening this month and to save the date for future activities and events. From our monthly support groups to our community outreach events, there are many opportunities for you and your family to connect with us.
Mark Your Calendar
Recursos en Español para personas que viven con ELA
Uno de los desafíos que pueden surgir para las personas que viven con ELA y sus seres queridos es encontrar recursos en Español. El Capítulo Golden West de la Asociación de ELA, ofrece recursos para aquellos afectados con ELA. Los encuentra en Español en nuestro sitio web.
Aprende más
Serving Hawaii’s ALS Community
The Golden West Chapter serves families facing ALS throughout all of the Hawaiian Islands. Please visit our Hawaii ALS community page to learn more about local activities, monthly support groups, outreach events, and important news. Mahalo lui noa for your support!
Learn More
More Ways to Give
There are many ways that you can support the Golden West Chapter, from setting up a fundraiser on Facebook, to shopping on Amazon Smile, and purchasing one or more of books written by members of our ALS community.
Learn More
Walk to Defeat ALS
Our Walk to Defeat ALS® events are held between April and November throughout the Golden West Chapter's service area. These annual community outreach events are critical components of the Chapter’s care services, fundraising, and public awareness efforts in the fight against ALS. They are an opportunity to come together and honor people with ALS and their families, learn important information, and to show your support for the ALS community.
Find A Walk Near You
Ride to Defeat ALS and Team Challenge ALS
Team Challenge ALS is The ALS Association Golden West Chapter's comprehensive endurance program to help fight ALS. Combine your passion and commitment to finding a cure for ALS while achieving physical challenges by participating in athletic events, such as our Rides to Defeat ALS, hikes, marathons, 5k's, basketball tournaments, and other endurance activities.
Learn More
Host your own event to support our Chapter
Using our online event tool, One Dollar Difference is an easy way to start fun and creative events to help raise funds on behalf of the Golden West Chapter. You can help support the ALS community and create a custom web page to promote your fundraiser anytime and anywhere! So go ahead and run a marathon, host a local community event, or donate your birthday to raise funds and help create a world without ALS.
Get Started
Celebrate a Loved One with ALS
Pay tribute to a friend or loved one affected by ALS by joining our Community of Hope. You can create a personalized web page, including photos and video, to share their story with your supporters and establish a lasting legacy in honor or memory of someone special's battle with ALS. It's quick and easy to get started, and we're here to help every step of the way!
Learn More
Whether you’re newly diagnosed, navigating your journey with the disease, caring for a person with ALS, or researching the cure, there are resources to support you.
Let us help you and your family cope with the day-to-day challenges of living with ALS.
For People with ALS
Learn about our grant program, upcoming scientific meetings, and opportunities to collaborate.
For Researchers
Caring for someone with ALS can be challenging. We offer resources and support to help.
For Caregivers-
“Lamar Helped Me Find My Voice”
November 18, 2022 -
Caregiver Education Course: The Helping Hand of Knowledge
November 15, 2022 -
An ALS Veteran Story, with a Twist
November 11, 2022 -
The ALS Association and Paralyzed Veterans of America Call on Congress to Quickly Pass the Justice for ALS Veterans Act
November 10, 2022 -
Seeking Justice for ALS Veterans
November 8, 2022
Important Update: FAQ’s about RELYVRIO (AMX0035)
September 29, 2022
FDA Approves New Treatment Option for Patients with ALS
September 29, 2022
ALS drug wins FDA approval despite questionable data
September 29, 2022
A message from Keith Verville, ALS Ambassador
September 27, 2022
Hawaii News Now: 2022 Hawaii Walk to Defeat ALS
Saturday, September 17, 2022
Community comes together to raise awareness on ALS
September 17, 2022
HPR President José Fajardo on living with ALS, new drug under FDA consideration
September 15, 2022
Sign up to receive the latest news in ALS and learn how you can continue making a difference in the search to treat and cure this disease.
Your gift will help The ALS Association Golden West Chapter support research to find treatments and cures for ALS, provide much-needed services to people with ALS and their families, and fund important public policy initiatives on behalf of the ALS commmunity. By becoming a part of the Golden West Chapter and making your gift today, you will help provide help and hope to thousands of people affected by ALS.