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Golden West Chapter

Contact: Jenica Lancy, Director of Communications
The ALS Association Golden West Chapter
media@alsagoldenwest.org
(415)-967-2572(ALSA)


FOR IMMEDIATE RELEASE

ALS/MND Global Awareness Day Unites Leaders in Scientific Research, Clinical Care
and the ALS Community in the Fight Against Lou Gehrig’s Disease

June 19, 2013 – The ALS Association Golden West Chapter is joining forces with the International Alliance of ALS/MND Associations for ALS/MND Global Awareness Day. Outside the United States, amyotrophic lateral sclerosis (ALS) also known as Lou Gehrig’s Disease, is called motor neuron disease (MND). Regardless of geographic location, this disease can strike anyone at any time of life without consideration of race, ethnicity, gender, or socioeconomic background.

At any given time, there are as many as 30,000 people in the US living with ALS. To date, The ALS Association has committed more than $67 million to find effective treatments and a cure. This investment has already increased the number of scientists around the world studying the disease and has helped to yield critical new discoveries including new insights into the complex genetic and environmental factors that are associated with it.

“Scientific research, coupled with clinical studies and the highest quality of care for people with ALS will serve as the means for realizing our vision to create a world where ALS no longer robs unsuspecting individuals of their ability to walk, talk and eventually to breathe,” said Fred Fisher, The Golden West Chapter’s President and CEO.  “Finding more effective treatments, and ultimately a cure for ALS, is very much a global effort.”

In honor of Lou Gehrig’s birthday on June 19 and ALS/MND Global Awareness Day on June 21, The ALS Association Golden West Chapter is calling on the ALS community to show their support and help raise awareness for this fatal disease in one of the following ways:

  • Update their Facebook and Twitter profile pictures with an ALS Twibbon and tweeting using the hashtag: #worldwithoutALS.

  • Join with those who have shared their stories and experiences living with ALS to raise awareness and build solidarity among the global ALS community.

  • Participate in the global screening events of the internationally-acclaimed film “I Am Breathing” at showings in Long Beach or Los Angeles.  Support the Chapter by attending the showing in Sebastopol Film Festival, when 50% of the proceeds will be given to support our mission.

About ALS/MND

ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Eventually, people with ALS lose the ability to initiate and control muscle movement, which often leads to total paralysis and death within two to five years of diagnosis. For unknown reasons, veterans are twice as likely to develop ALS as the general population. There is no cure, and only one drug approved by the U.S. Food and Drug Administration modestly extends survival.

About The ALS Association and The Golden West Chapter

The mission of The ALS Association is to lead the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s disease and their families to live fuller lives by providing them with compassionate care and support.  We are a member of the National Health Council and the only National organization solely dedicated to fighting ALS on all fronts while directly serving the ALS community. By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The ALS Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure. The Golden West Chapter serves people with ALS and their families in 31 counties throughout California and in the state of Hawaii.  For more information about The ALS Association Golden West Chapter, please visit us at www.alsagoldenwest.org or email us at info@alsagoldenwest.org

Golden West Chapter

Contact: Jenica Lancy, Director of Communications
The ALS Association Golden West Chapter
media@alsagoldenwest.org
(415)-967-2572(ALSA)


FOR IMMEDIATE RELEASE

ALS/MND Global Awareness Day Unites Leaders in Scientific Research, Clinical Care
and the ALS Community in the Fight Against Lou Gehrig’s Disease

June 19, 2013 – The ALS Association Golden West Chapter is joining forces with the International Alliance of ALS/MND Associations for ALS/MND Global Awareness Day. Outside the United States, amyotrophic lateral sclerosis (ALS) also known as Lou Gehrig’s Disease, is called motor neuron disease (MND). Regardless of geographic location, this disease can strike anyone at any time of life without consideration of race, ethnicity, gender, or socioeconomic background.

At any given time, there are as many as 30,000 people in the US living with ALS. To date, The ALS Association has committed more than $67 million to find effective treatments and a cure. This investment has already increased the number of scientists around the world studying the disease and has helped to yield critical new discoveries including new insights into the complex genetic and environmental factors that are associated with it.

“Scientific research, coupled with clinical studies and the highest quality of care for people with ALS will serve as the means for realizing our vision to create a world where ALS no longer robs unsuspecting individuals of their ability to walk, talk and eventually to breathe,” said Fred Fisher, The Golden West Chapter’s President and CEO.  “Finding more effective treatments, and ultimately a cure for ALS, is very much a global effort.”

In honor of Lou Gehrig’s birthday on June 19 and ALS/MND Global Awareness Day on June 21, The ALS Association Golden West Chapter is calling on the ALS community to show their support and help raise awareness for this fatal disease in one of the following ways:

  • Update their Facebook and Twitter profile pictures with an ALS Twibbon and tweeting using the hashtag: #worldwithoutALS.

  • Join with those who have shared their stories and experiences living with ALS to raise awareness and build solidarity among the global ALS community.

  • Participate in the global screening events of the internationally-acclaimed film “I Am Breathing” at showings in Long Beach or Los Angeles.  Support the Chapter by attending the showing in Sebastopol Film Festival, when 50% of the proceeds will be given to support our mission.

About ALS/MND

ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Eventually, people with ALS lose the ability to initiate and control muscle movement, which often leads to total paralysis and death within two to five years of diagnosis. For unknown reasons, veterans are twice as likely to develop ALS as the general population. There is no cure, and only one drug approved by the U.S. Food and Drug Administration modestly extends survival.

About The ALS Association and The Golden West Chapter

The mission of The ALS Association is to lead the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s disease and their families to live fuller lives by providing them with compassionate care and support.  We are a member of the National Health Council and the only National organization solely dedicated to fighting ALS on all fronts while directly serving the ALS community. By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The ALS Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure. The Golden West Chapter serves people with ALS and their families in 31 counties throughout California and in the state of Hawaii.  For more information about The ALS Association Golden West Chapter, please visit us at www.alsagoldenwest.org or email us at info@alsagoldenwest.org