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Golden West Chapter News

Thank you for visiting our "In the News" section, a valuable resource for both the community and media professionals.  Be sure to register to receive our monthly enewsletter- "Connections" and receive news updates and other highlights from The ALS Association and the Golden West Chapter. You can also subscribe to our many social media channels and networks.

For any media inquires, please contact us at or call our media hotline 415-967-2572.


The ALS Association Golden West Chapter to Honor Mitsubishi Tanabe Pharma America, Inc. as a Champion in the Search for Treatments and Cures for ALS
September 16, 2019

Community Invited to the 15th Annual Napa Valley Ride to Defeat ALS on Saturday, September 21, 2019 to Support the Search for Effective Treatments and Cures for ALS
September 13, 2019

The ALS Association Golden West Chapter to Honor Fred Noteware as a Champion in the Fight Against ALS
September 11, 2019

ALS Has Paralyzed His Body. Activism. His Family and Love Are Keeping Him Resilient
September 9, 2019

Time: How My Dying Body Could Help Give Yours a Future
September 9, 2019

Community Invited to Join the 7th annual Hawaii Walk to Defeat ALS on Saturday, September 14, 2019 to Support the Search for Effective Treaments and Cures
September 9, 2019

Medicare for All Activist with ALS Ady Barkan on Why He Advocates: 'It Gives Me a Reason to Get Up Every Day'
September 4, 2019

InMenlo: Menlo School Water Polo does #ALSBucketChallenge in Support of M-A Parent
September 3, 2019

An Important Annnouncement About Former Chapter Board Member, Rusty Selix
August 29, 2019

The ALS Association Golden West Chapter to Honor Dean Hartman with 2019 Walk Hero Award at the 17th Annual Ventura-Santa Barbara County Walk to Defeat ALS® on Sunday, October 6, 2019
August 28, 2019

SF Examiner: Supercomputers and a Cure: A's ALS Awareness Day Takes a Leap
August 21, 2019

The Silicon Valley Voice: 49ers Honor Number 87, Dwight Clark on 8/7
August 9, 2019

WBUR: Team Challenge ALS: Friendship and a $2 Million Basketball Tournament
August 9, 2019

ABC News: Great Strides in ALS Research 5 Years After Ice Bucket Challenge Broke the Internet
August 8, 2019

The San Francisco Examiner: Niners Host ALS Patients for Dwight Clark Celebration
August 7, 2019

KPIX 5: 49ers Host Dwight Clark Day at Levi's Stadium
August 7, 2019

FOX 2: Dwight Clark Day at 49ers Training Camp Commemorates 'The Catch'
August 7, 2019

LA Weekly: Uh Oh - Pandoras and Muffs Return In The Coolies
August 1, 2019

Niners Nation: 49ers to Host "Dwight Clark Day" on 8/7 During Opening Training Camp Practice
August 1, 2019

PREVIOUS HEADLINES (through 07/30/2019)

Challenge Me to Halt the Progression of ALS
July 30, 2019

Stanford Medicine: Key Gene Behind Hallmark of Lou Gehrig's Disease Identified
July 29, 2019

Challenge Me to Find More ALS genes
July 23, 2019

TheScientist: Neuroscientist Rahul Desikan Dies
July 19, 2019

Today: 5 Years Later, Man with ALS Who Popularized Ice Bucket Challenge Still Inspires
July 19, 2019

Challenge Me to Finish What Was Started
July 17, 2019

Classic Rock: Jason Becker Interview: A Triumph of the Heart
July 10, 2019

Challenge Me to Make the Impossible Possible
July 9, 2019

Record-breaking Attendance at Fresno Grizzlies Fourth of July Firework Extravaganza
July 5, 2019

Challenge Me to Revolutionze the Treatment of ALS
June 29, 2019

KPIX: Solar Invention Spurs Idea to Bring Light to Impoverished Communities Across Globe
June 19, 2019

HuffPost: I'm Dying of ALS, And Watching Congress Debate Health Care This Week Gave Me Hope
June 13, 2019

The Modest Bee: 'He Lost Who He Was.' How Oakdale Teen is Healing After Disease Killed His Dad
June 12, 2019

The Modest Bee: Teen Shares Pain of Losing Dad to ALS
June 11, 2019

Inaugural ALS Golf Classic in Daly City on Monday, June 17 Honors the Memory of a Dear Friend of Local Police While Raising Awareness and Support for the ALS Community
June 8, 2019

Yahoo: Cytokinetics and The ALS Association Renew Partnership to Advance the Fight Against ALS
May 31, 2019

ABC7: San Francisco Giants Super Fan Fights to End ALS While Struggling with the Disease Himself
May 24, 2019

Now This: Ady Barkan Asks Representative to Support Medicare for All
May 22, 2019

UCSF: Rahul Desikan, MD, PhD Investigates the Science and Experience of ALS
May 22, 2019

The ALS Association Golden West Chapter is Pleased to Announce an Exciting New Collaboration with Google's AI for Social Good Program to Help People with ALS Who Have Communication Difficulties!
May 20, 2019

Spotlight on: Cheryl Wallengren and Claire Whitaker, The Power of Love and Family
May 19, 2019

Challenge Me to Change the Fight Against ALS Forever
May 14, 2019

Kaiser Permanente: Service Leaders Recognized with Donations to Local Charities
May 13, 2019

Spotlight On: Juri Kameda, Reflections on Motherhood and ALS
May 12, 2019

Community is Invited to Help Raise Awareness and Support for the ALS Community Served by The ALS Association Golden West Chapter at Eat to Defeat ALS on Friday, May 17
May 3, 2019

STAT: I Have ALS. I Wish a Polygenic Analysis Had Told Me it Was Coming
April 30, 2019

The Intercept: Ady Barkan Is Making What Is Likely His Last Long Journey - and It's to Testify in Support of Medicare for All
April 30, 2019

Newsweek: Who Is Ady Barkan? Dying Health Care Activist Vows To Appear At House Medicare For All Hearing
April 29, 2019

Politico: 'Medicare for All' Poised for its Moment
April 29, 2019

Vox: Democrats' Historic, Messy, First-Ever Medicare-for-All Hearings, Explained
April 30, 2019

Fifth Annual Jim Tracy 5K To Defeat ALS Returns To Golden Gate Park On Sunday, April 28
April 28, 2019

The Garden Island: One of the Lucky Ones
April 28, 2019

The Acorn: Ride on against ALS
April 25, 2019

San Francisco Chronicle: UCSF technology could be breakthrough for those who have lost ability to speak
April 24, 2019

UCSF: Synthetic Speech Generated from Brain Recordings
April 24, 2019

Nature: Speech Synthesis from Neutral Decoding of Spoken Sentences
April 24, 2019

Community Invited to Join the Fight Against ALS on Saturday, June 1, 2019 at the 7th Annual Sonoma County Walk to Defeat ALS
April 22, 2019

Community invited to the Inaugural SoCal Ride to Defeat ALS on Sunday, May 04, 2019 to support the search for effective treatments and cures for ALS.
April 20, 2019

KEYT: Over $33,000 Raised in Walk to Support ALS Community in San Luis Obispo
April 14, 2019

Your Central Valley: Local Celebrities Will Tee Up at New Event to Help Local ALS Association Chapter
April 14, 2019

Spotlight On: Devin Ward- inaugural San Luis Obispo Walk Hero Award Winner (and Bird Of A Different Color)
April 12, 2019

The Signal: How You Can Help Valencia Softball and Baseball Raise Awareness for ALS
April 8, 2019

Politico: The Most Powerful Activist in America Is Dying
March 24, 2019

Common Dreams: Gripped by ALS, Social Justice Activist Ady Barkman Inspired With Story of "The Best Hug I've Ever Had"
March 23,2019

Spotlight On...Gwen Petersen A Determined ALS Fighter
March 14, 2019

The Washington Post: I'm a scientist studying brain illnesses. Now I'm in a lock-in, living with one of them: Lou Gehrig's disease.
March 2, 2019

Former Santa Maria Bonita elementary teacher to be honored with 2019 Walk Hero Award at the 8th Annual San Luis Obispo Walk to Defeat ALS® on Saturday, April 13, 2019
March 1, 2019

San Francisco Chronicle: Insight: Genetic research may hold promise for ALS, Alzheimer's
March 1, 2019

Los Angeles Times: Burbank man with ALS welcomes adrenaline rush from 100-mph laps around racetrack
March 1, 2019

San Francisco Chronicle: With Anonymous $25,000 Gift, ALS-stricken Songwriter's Music Lives On
February 26, 2019

Your Central Valley: Campaign Asks to #VoiceYourLove for Those Who Can't
February 17, 2019

KSEE 24: Families Hit by ALS Say More Awareness is Still Needed for the Disease
February 14, 2019

New public awareness campaign encourages people to voice their love and honor those living with ALS who have lost their ability to speak
February 11, 2019

CBS: "SpongeBob SquarePants" creator Stephen Hillenburg dead at 57 after battle with ALS
November 27, 2018


2014-People Magazine-LA Walk & Team Nanci



Videos- General:

"Matt Chaney is Living with ALS" (:60)
(:30,and :90 versions also available)

The ALS Nation (1:20)



I am Lou

Wayne Carter
November 9, 2012

Colin Campbell

September 6, 2012

Lynn Holmes
July 20, 2010 

Megan Mishork and Marilyn Silva

November 30, 2009

Clarence "Bully" Nakaahiki
December 5, 2008

We are Lou

Celeste Perry and the team at Clear Channel
September 6, 2013

Brian Zalewski and the members of LUCE
September 5, 2013

Robert Hammer
December 1, 2012

Heather Wajer
October 4, 2012

Team Cytokinetics

September 6, 2012l

PSAs and Videos- Napa Valley Ride to Defeat ALS:

"10th Anniversary of the Napa Valley Ride to Defeat ALS" (1:20)

PSA's and Videos- Walks: