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FOR IMMEDIATE RELEASE    
Media Contact: Jenica Lancy
Director of Marketing and Communications

The ALS Association Goldenwest Chapter

(415) 967-2772

media@alsagoldenwest.org

 

 

Mini walk logo

 

The ALS Association Golden West Chapter to Honor Dean Hartman with 2019 Walk Hero Award at the 17th Annual Ventura-Santa Barbara County Walk to Defeat ALS® on Sunday, October 6, 2019

August 28 2019- Agoura Hills, CA                                                                                

The ALS Association Golden West Chapter is proud to announce that Dean “Dino” Hartman will be the recipient of the 2019 Walk Hero Award at the 17th annual Ventura-Santa Barbara County Walk to Defeat ALS.  The award is presented to an individual who is making courageous and inspirational efforts in the areas of advocacy, fundraising, and public awareness while living with ALS.   

Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is a fatal, neurodegenerative disease that attacks nerve cells in the brain and spinal cord. ALS is not contagious and does not discriminate – it affects men and women of all ages, ethnic backgrounds, and socioeconomic communities around the world. For unknown reasons, those who have served in the military are diagnosed with ALS nearly twice as often as the general population.  People with ALS lose their ability to move, speak, swallow, and eventually the ability to breathe, while all five senses typically continue to function normally. The average life expectancy of a person with ALS is two to five years from diagnosis. Currently, there are only two drugs approved by the U.S. Food and Drug Administration (FDA) to treat ALS, which only extend life by a few months. At this time, there is no known cure.

Prior to his diagnosis of ALS in October 2014, “Dino” was a ready mix driver for Bonanza Concrete for 32 years and, after retiring, became a school crossing guard for Environmental Academy of Research Technology and Earth Sciences School (EARTHs) in Newbury Park. Dean and his wife, Carolyn, have been married for 15 years. They enjoy cruising and traveling with friends and continue to do so despite Dean’s ALS diagnosis.

Since his diagnosis, Dean has become a very active supporter of The Golden West Chapter. Per Carolyn, “He enjoys all the people that work at the Chapter who are very giving of their time and energy and who do so much in the fight against ALS.” Dean attends support group in Ventura and is happy to share his story and tips and tricks on how to navigate disease with his fellow persons with ALS. Dean attends many Chapter events including the SoCal Ride to Defeat ALS, in Newbury Park; Dodgers ALS Awareness games; and the ALS Sucks Poker Tournament, in Camarillo, with his friend and 2017 ALS Walk Hero Award recipient, Chris Chergoski. He serves as an ALS Ambassador whenever he is called to do so, sharing his story and positive energy wherever he goes.

Dean, along with his family and friends, have participated in the Ventura-Santa Barbara County Walk to Defeat ALS as team “Dino’s Angels” since 2016 and have raised over $30,000 in support of the mission of The ALS Association Golden West Chapter. Per Dean, “the 2019 Walk Hero Award means so much to me, and I am humbled by the honor. I have met many friends afflicted with the same disease and we support one another and encourage ourselves to live life to the fullest!” 

The 17th Annual Ventura/Santa Barbara County Walk to Defeat ALS® will be held on Sunday, October 6, 2019 at 651 E. Thompson Blvd., Plaza Park, Ventura CA. Registration starts at 9:30 a.m. with special opening ceremonies beginning at 10:15 a.m. and the event will feature speakers, the presentation of the 2019 Walk Hero Award and 2019 Community Champion Award to Superior Mobility. At 11:00 a.m., the 2 mile Walk will head towards Downtown Ventura, proceed along the Promenade and return to Plaza Park. The event is free and open to the public, and all funds raised support the mission-critical priorities of The ALS Association Golden West Chapter in care services, public policy, and research. This year’s goal is to raise $105,000 to advance the search for effective treatments and cures for ALS and to serve the diverse, urgent needs of the ALS community in Ventura and Santa Barbara County.

Online registration is free. For more information, register for the event, or make a gift in support, please visit www.Ventura-SBWalktoDefeatALS.org. For more information about sponsoring, covering, or attending the event, please contact Jessica Partida, Regional Director of Community Outreach at jpartida@alsagoldenwest.org or (818) 865-8067.

About The ALS Association and the Golden West Chapter

The mission of the ALS Association is to discover treatments and cures for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.  Our vision is to create a world without ALS.

We are a member of the National Health Council and the only National organization solely dedicated to fighting ALS on all fronts while directly serving the ALS community. By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The ALS Association builds hope and enhances quality of life while aggressively searching for new treatments and cures.

The Golden West Chapter serves people with ALS and their families in 31 counties throughout California and the state of Hawaii. Everything we do advances the search for effective treatments and cures for ALS.  For the seventh consecutive year, we have earned the highest rating possible from Charity Navigator, America’s largest independent charity evaluator, in recognition of our ongoing commitment to sound fiscal management, accountability and transparency. Only 6% of the charitable organizations rated receive this exceptional distinction. For more information about The ALS Association Golden West Chapter, please visit us at www.alsagoldenwest.org.