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NEWS RELEASE    
Contact: Jenica Lancy
Director of Communications

(415) 967-2572 (ALSA)

media@alsagoldenwest.org

 

Logo GWC 2017

 

2019 Champions Logo

The ALS Association Golden West Chapter to honor Fred Noteware as a Champion in the fight against ALS

09/11/2019 – San Francisco, CA

Fred Noteware 1.jpg
Fred Noteware

The ALS Association Golden West Chapter will proudly honor Fred Noteware as the Dean and Kathleen Rasmussen Advocate of the Year at the 2019 Champions for Care and a Cure celebration to be held on Friday, November 15, 2019 in San Francisco. From the Hyatt Regency San Francisco on the iconic Embarcadero waterfront, this inspirational and informative event features wine tasting, a gourmet dinner, auction, entertainment, and presentation of the Golden West Chapter’s Essey Awards to notable members of the ALS community.

The prestigious Essey Awards, named in honor of one of the chapter’s founders, San Francisco’s Richard “Dick” Essey, are given annually for outstanding efforts in support of The ALS Association’s mission priorities in ALS research, care services, and public policy initiatives. The Golden West Chapter will honor Noteware for his tireless and steadfast efforts to educate and influence public policy in California in support of the ALS community. His firm, Noteware and Rosa Government Relations, has represented the ALS community for more than a decade and has achieved unprecedented success in securing state funding for ALS research and our wraparound model of care.

Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is a fatal, neurodegenerative disease that attacks nerve cells in the brain and spinal cord. ALS is not contagious and does not discriminate – it affects men and women of all ages, ethnic backgrounds, and socioeconomic communities around the world. For unknown reasons, those who have served in the military are diagnosed with ALS nearly twice as often as the general population. People with ALS lose their ability to move, speak, swallow, and eventually the ability to breathe, while all five senses typically continue to function normally. The average life expectancy of a person with ALS is two to five years from diagnosis. Currently, there are only two drugs approved by the U.S. Food and Drug Administration (FDA) to treat ALS, which only extend life by a few months.  At this time, there is no known cure.

At the event, the Golden West Chapter will also recognize Mitsubishi Tanabe Pharma America, Inc. (MTPA) with the Essey Commitment to Cures Award for its extensive efforts and collaboration on ALS research, development, and education; and its dedication to bring treatments and cures to the ALS community. The Chapter will also honor Kathy Beallo, as Philanthropist of the Year, for her investment in our vision, as a lasting tribute to the life and legacy of her beloved husband, Dr. Robert Beallo, who lost his four year battle with ALS in 2008.

Proceeds from Champions for Care and A Cure will provide funding for The ALS Association Golden West Chapter’s mission priorities in care services, public policy, and cutting-edge global research toward effective treatments and a cure for ALS. For sponsorship, tickets and more information, please visit www.ALSChampions.org or contact Jena Brown, Director of Special Events, at jbrown@alsagoldenwest.org or (818) 865-8067.

About Fred Noteware:
Fred Noteware is a veteran lobbyist with more than three decades of experience drafting legislation, developing strategy, negotiating with policymakers, and testifying before legislative committees. His advice is routinely sought from legislators, staff, administration officials, and “third house” colleagues. He has a precise understanding of the rules governing the legislative process, and a keen insight into the intricacies of policy making.  His company, Noteware & Rosa Government Relations is among the Capitol’s most respected firms, given its commitment to ethics, respect for the institution of the Legislature itself, and attention to detail.

About the ALS Association Golden West Chapter:
The mission of The ALS Association is to discover treatments and cures for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Our vision is to create a world without ALS. The Golden West Chapter serves people with ALS and their families in 31 counties throughout California and in the state of Hawaii. Everything we do advances the search for effective treatments and cures for ALS. For more information about The ALS Association Golden West Chapter, please visit us at www.alsagoldenwest.org or email us at info@alsagoldenwest.org

EVENT DETAILS:
Hyatt Regency San Francisco, 5 Embarcadero Center, San Francisco, CA, 94111
6:00 PM - Wine Tasting, Cocktails and Silent Auction
7:30 PM - Dinner, Entertainment, Ceremony. Cocktail Attire
Individual tickets and tribute ads available for purchase at http://www.ALSChampions.org



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