Copy this link to watch my story on youtube: https://youtu.be/sV5ph1CLlYA
My name is Lorene Lee and I have ALS.
ALS is a disease that will rob your body of most of your muscles to LIVE. You will eventually be unable to walk, speak, eat, and breathe. It can be a fast death or if you are lucky live may be 5 to 7 years. Here are other reasons why I feel compelled to raise money for the fourth time this year:
1. There is still NO CURE. 2. I miss being free to go anywhere. 3. Every 90minutes someone will be devasted when they receive this diagnosis. 4. Cost of caregiving is crazy and not simple because the body/symptoms constantly change. 5. 30% will lose their mind. 6. I miss not being able to put my arms around my husband to hug him. And my children and more. My dog too. 7. Just drinking cool refreshing water will be soon a thing of the past. 8. Even to bite into crispy fried chicken. 9. To breath a full breath of fresh air.
Please DONT feel sorry for me but just be happy if you can do all these things and are in good health. Believe me I was always active and ate healthy.
Just to let you know I am writing this using my eyes on a special Tobii eye computer. I can't talk, and lost my speech for few years already.
Please help me to raise money for a cure. Walk with me or be on my team. You can form your own team too.