My name is Lorene Lee and I have ALS. Copy this link to watch my story on youtube:
https://youtu.be/sV5ph1CLlYA
**Using assistive communication technology with a visual-tracking system, Lorene Lee used her eyes to compose the following message, one letter at a time. In Lorene’s testament to the hardship of communicating with this disease, grammatical errors were intentionally left unedited.**
this is an awful time to be asking for a donation. I hope your surviving this incredible time we live in.
But unfortunately, those affected with ALS, their families, friend's, caregivers, still need support from the ALS Association community'. While i sit here at home, i feel helpless, more so than ever. Even if i collect only $1000, is better than no thousand.!
The reality of those affected with ALS,.. IS,... "Staying In Place. " Its nothing new to me or them.. I can not even remember when i shopped at my favorite store, target. Or trader Joe's .......
Just going out would take lots of teamwork. Like eating at a restaurant i bring my own chair. ( for proper neck balance ) That was crazy.!! Even to the hotel. The bellman said. "i remember you, because of your chair ". Those were pre pandemic days.
With already compromised breathing, this pandemic is especially bad news for people with ALS.
For me :
ALS... It has robbed me of my ability to Walk ., run, skip, dance, drive, ride my bike, walk hiro , my dog,....
It has robbed me of my ability to speak., sing,.... using my own voice to say 'i love you tony ', i love you andrea, 'i love you brian '..... Thank you eileen,...
It has robbed me of hugging tony , carrying hiro my doggy, combing my hair, wrapping gifts, making bows, and especially writing. I really enjoyed writing. :´(
It took away biting into a crispy /crunchy fried chicken drumstick, chomping down on a chocolate chip cookie, or potato chip's, biting into juicy ribs... Every thing must be squashed up, cut up, mixed up, blendered.... ..
You get the picture? And EVENTUALLY DEATH.!!
Why help and donate??????
The ALS Association MISSION! And VISION
HAVING and LIVING in a world WITHOUT ALS. To discover necessary treatment's and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
FULL STOP.!
Please check the ALS Association website for more information and their 5 star ratings.
As always thank you in advance! Sending you much aloha , lorene lee, tony and ohana
