Help us raise money to find a cure for ALS!
|Event:||Golden West Chapter Walk to Defeat ALS|
|Date:||Saturday, October 23, 2021|
|Team:||Central Valley Champions|
Our Central Valley Champion walk team started in 2016 with several patients/families participating. Then our team dissolved for a few years. This year, after our years apart we decided to make this a team of remembrance AND in honor.
We REMEMBER Freddie Eason (with son Jason above her, husband beside her) and Patty Bartucci (holding sign). Freddie had a quiet tenacity about her. Her positivity, strength and contagious smile, is carried on through her son Jason, he gave his Mom special TLC and she was so proud of him. She was his rock! Patty I must say is renowned for her hugs and being the VP of our Fresno support group! She was a firecracker with lots of spunk! Her partner Ed, watched over her like a hawk, loyal and supportive her whole life. They both hold a fond place in their family's and in the Central Valley Walk members' hearts. Their memory is a blessing!
We HONOR Arthur and Carlotta Wint who have written a special message to all living with ALS in their families. (Photo above with Jamaican flag with only one family of grandchildren, there are 10 total with eldest proudly serving in the US Navy, currently deployed to Japan)
Greetings from Arthur and Carlotta Wint. Our journey with ALS began in February of 2014, when Arthur was formally diagnosed in San Francisco, after two years of playing hide and go seek, trying to find out what was going on, with his health.
Over the past few years, we have experienced many ups, downs, laughter and tears including a myriad of emotions in between, but we decided early on to keep moving forward and live life as normally as we could, for as long as we could. Fast forward to where we are today, that was a good decision, since we have found ALS to be a very fluid disease, as well as an interesting teacher. It has afforded us the opportunity to have interactions and interchange with a host of caregiving and other support personnel, who have helped us maneuver this wonderland, we call a body, to overcome and rise above, time and time again!
We are so thankful for the educational grounding we received early on, particularly the lessons we learned from our client advocate, to become our own best advocate, has served us well, over the years and helped develop the tenacity that is often needed, under certain circumstances. There are a lot of physical battles that must be fought, however, unfortunately, battles to get what you need from doctors and varying specialist, with little exposure to this disease, but are slow to listen and learn about ALS, to battles with insurance coverage for services and the growing need for necessary medical equipment, can be frustrating, to say the least. The support from and information provided by the ALS Association, MDA, ALS Clinic and a tenacious client advocate named Margie, have been invaluable resources to us, and their continued commitment and support, to this cause, have definitely been a vital part in clearing the brush and debris enabling our road, on this journey, to be a little less rocky.
Last, but not least, our faith, and the evidence of grace, from the Almighty, has played an integral part in our walk and relationship with this disease. We have been bouyed as we have traversed this family journey of “living” with ALS, rather than focusing on, when our Father in heaven, will eventually call us home. Our whole family offer our prayers, support and encouragement to all who are just starting their journey or, like us, have traveled down the road quite a bit further. I remember listening to an interview years ago, on the radio, with a person who was seriously ill. I’ll never forget when asked why did she think God placed this burden on “her” and her response was “why not?” She faced her challenge with grace and dignity. Little did we know then, how much of an impact a radio interview would have on our family twenty years later. We continue to move forward, however that looks, and pray the day will come when Amyotrophic Lateral Sclerosis is no longer.
Please join our team in supporting the ALS Association fundraising efforts to find a cure. NEVER GIVE UP.