Thank you for helping me reach my Walk to Defeat ALS fundraising goal for 2021. This will be my first year walking in memory of my beloved husband, Ismail, who passed away on December 22, 2020 due to acute cardio-pulmonary arrest and pneumonia, secondary to ALS.
Beloved by many, he lived a long and happy life with ALS. Although the average life expectancy of a person with ALS is two to five years from the date of diagnosis, Ismail lived with ALS for 33 years after the date of his diagnosis and more than 50 years from the onset of his first symptoms. He was grateful for the outstanding care he received for more than 40 years from Kaiser Permanente, from all of his doctors and medical staff, and from the wonderful team of nurses who cared for him over the years in his home. His family is also grateful for the excellent end-of-life comfort care he received at Adventist Health in Simi Valley, California.
Ismail's Supporters has been active in the ALS Community, raising awareness and funds for The Golden West Chapter of the ALS Association and the Ventura-Santa Barbara Walk to Defeat ALS since 2005.
Please consider raising money and walking with us, or sponsoring Ismail's Supporters by being a virtual walker and making a donation on behalf of our team. With your help, we will be able to make a difference. I hope you'll invite your family, friends, co-workers, and neighbors to get involved, too, and join us in our cause!
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis, but I have been living with ALS for more than 30 years. Although I am totally paralyzed and dependent on a ventilator to breathe, I am determined to live life to the fullest and to help others who are fighting this disease.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease yet it still costs loved ones an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate to our team, Ismail's Supporters, today.