We are deeply saddened to share that Ryan died on February 19, 2019 surrounded by his family.
In 2015 while living in Telluride, Colorado, Ryan noticed a decline in his hand function. After numerous tests, he was diagnosed with ALS. It was very sad and devastating, but our family knew he would never give up hope. The ALS Association Golden West Chapter has been an ongoing and amazing support system for Ryan and our family. Your support and love is forever appreciated!!
Ryan was a young man of uncommon wisdom and grace, which he brought to everything he did, including his own journey with the disease. He knew that his ALS journey would be ending soon, yet he and his family decided to give their remaining time together to use their voices to raise awareness and support for our ALS community.
Ryan once said, "The intense challenge of living with ALS is a fire that has forged me into a far better version of myself. But I do not consider that I am battling against ALS. It is unhelpful to me to frame it this way, and frankly it is not a fair fight. And if I thought of it this way, I would be measuring myself as failing as the disease progresses. I decided that I needed to love my body and myself as I am."
This will be our fourth year at the Sonoma County walk. Please join us in memory of our son, Ryan Farnsworth, and all who fight this horrible disease.
Ryan has recorded several videos and he has created his own website. Please check it out! www.alswellness.com
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease though support is bringing researchers closer to an answer. In the mean time it costs an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.
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