Help us raise money to find a cure for ALS!
|Event:||Golden West Chapter Walk to Defeat ALS|
|Date:||Saturday, October 23, 2021|
|Team:||Team Wint - Love and Happiness|
Greetings from Arthur and Carlotta Wint. Our journey with ALS began in February of 2014, when Arthur was formally diagnosed in San Francisco, after two years of playing hide and go seek, trying to find out what was going on, with his health.
Above is a photo taken earlier this year, when our children planned a surprise party, in celebration of our 50th Wedding Anniversary. It was such a blessing to be able to be with our whole family, including our decicated "Tik Tok" caregiver;;-) Although we missed seeing our eldest grandson, who is currently serving in the Navy (So proud!) and deployed overseas, it was a day we had prayed for. God truly fulfilled the desires of our hearts!
Over the past few years, we have experienced many ups, downs, laughter and tears including a myriad of emotions in between, but we decided early on to keep moving forward and live life as normally as we could, for as long as we could. Fast forward to where we are today, that was a good decision, since we have found ALS to be a very fluid disease, as well as an interesting teacher. It has afforded us the opportunity to have interactions and interchange with a host of caregiving and other support personnel, who have helped us maneuver this wonderland we call a body, to overcome and rise above, time and time again!
We are so thankful for the educational grounding we received early on, particularly the lessons we learned from our client advocate, to become our own best advocate. This has served us well, over the years and helped develop the tenacity that is often needed, under certain circumstances. There are a lot of physical battles that must be fought, however, unfortunately, from battles to get what you need from doctors and varying specialist, with little to no exposure to this disease, and are slow to listen and learn about ALS, to the battles with insurance coverage for services and the growing need for necessary medical equipment, all this can be frustrating, to say the least.
The support from and information provided by the ALS Association, MDA, ALS Clinic and a tenacious client advocate named Margie, have been invaluable resources to us, and their continued commitment and support, to this cause, have definitely been a vital part in clearing the brush and debris enabling our road, on this journey, to be a little less rocky.
Last, but not least, our faith, and the evidence of grace, from the Almighty, has played an integral part in our walk and relationship with this disease. We have been buoyed as we have traversed this family journey of “living” with ALS, rather than focusing on, when our Father in heaven, will eventually call us home. Our whole family offer our prayers, support and encouragement to all who are just starting their journey or, like us, have traveled down the road quite a bit further. I remember listening to an interview years ago, on the radio, with a person who was seriously ill. I’ll never forget when asked why did she think God placed this burden on “her” and her response was “why not?” She faced her challenge with grace and dignity. Little did we know then, how much if an impact a radio interview would have on our family twenty years later. We continue to move forward, however that looks, and pray the day will come when Amyotrophic Lateral Sclerosis is no longer.
Arthur and Carlotta
Thank you for helping us reach our fundraising goal! Together we can make a difference in the lives of those affected by ALS. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatments and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
WHY WE NEED YOUR HELP
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
That’s why we’re participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge. To help unlock the mystery of ALS and find the key to treatments a cure. Will you join us?
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!