Even though 23 years has gone by since my grandma, Noreen Gurney, lost her fight with ALS, the memories and impact of that time period have been ever present in my life, While time may heal some wounds, it also provides a foundation to support causes that have impacted me on a deep level, and it gives me a sense of determination. I realize now that sometimes people can’t stay and fight because their loss is so present.
Now that I am engaged in raising awareness about this horrible disease, I am able to dive deeper and educate myself about ALS itself, something I wasn’t able to do when my Grandma was still alive. I’m very fortunate that most of my family is still alive, and I want my grandmother’s legacy to be for others to have the gift of time with their loved ones by helping to find effective treatments and cures for this disease.
The more focus, energy, and ideas there are percolating around this issue, the better our chances are of finding a cure and creating a culture of community.
I invite you to join me virtually at the Golden West Walk on Saturday, October 23. Please consider making a donation and/or purchase the patch to show your support for our ALS community!
Why We Need Your Help
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!