Why we work to Defeat ALS...
This year is the 17th annual Napa Valley Ride to Defeat ALS, a zoom event this year as we support this mission in whatever ways we can during this pandemic. I am inspired by my nephew Shae and his dad, my dear brother Rusty who would have been 71 this September 23. Sadly Rusty died peacefully on August 27, 2019 surrounded by loving family at his bedside — singing, praying, holding hands, crying, and even laughing together as he took his "wings".
Shae created "TEAM RUSTY", and wrote,
"This ride supports the Golden West Chapter of the ALS Association, the same group that awarded Dad (Rusty) with the Essey Award for outstanding contributions and efforts in advancing effective treatments for ALS. He won it for advocating to get $9,000,000.00 added to the California budget to fight this disease.
If he can do that while fighting for his life, I'm hoping I can do a fraction of that while cycling." Shae already has done a remarkable job of fundraising thanks to friends and family and extended generous support from so many.
Please consider being on or supporting TEAM RUSTY, in whatever way resonates with you. I will be walking with my mom, and family while the more active parts of our 'ohana ride! Thank you to all of you who have already given. May we together find a cure.
What is ALS?
Often referred to as Lou Gehrig's disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe.
Why We Need Your Help
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
1. The average life expectancy of an ALS patient is two to five years from the time of diagnosis.
2. Every 90 minutes someone in this country is diagnosed with ALS, and every 90 minutes another person will lose their battle against this disease.
3. ALS can strike anyone. Presently there is no known cause of the disease. Someone you know or love may die from ALS unless a cure is found.
4. Caring for a loved one with ALS costs on average of $200,000 each year.
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