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Golden West Chapter's September 2021 E-Newsletter

 
Spotlight On...

An extraordinary community of supporters

Now in its 17th year, the Napa Valley Ride to Defeat ALS remains the largest single annual fundraising event fueling the search for effective treatments and cures for ALS. This spectacular cycling event has raised more than $9.3 million since its inception.

Working together, this passionate group of volunteers, participants, and families facing ALS have built something extraordinary: a community committed to advancing scientific discovery, providing compassionate care and support, and to empowering people affected by ALS to live their lives to the fullest

We invite you to meet some of the incredible volunteer committee members through this inspiring video - you will be moved to action by their “never give up” spirit. Please sign up or make a gift today to this powerful event or any of the Golden West Chapter’s community outreach events today!

Learn More

 



Golden West Chapter Updates & Upcoming Events


Each month, please be sure to read our overview of recent news, important updates, and upcoming activities. It's the best way to stay connected and be "in-the-know" with all the latest and greatest information from the Golden West Chapter!

NEXT UP:  This September, please check our calendar for upcoming events and online support groups, including a special presentation from Hope Loves Company; participate in our virtual Napa Valley Ride to Defeat ALS & Walk; and RSVP for our next ASK ME: "ALS Alternative Therapies, Cannabis and More".

 

This Month

We are HERE to support YOU: Online Support Group Meetings

The Golden West Chapter offers many Online Support Group Meetings. Experience all of the benefits of attending an in-person support group from the comfort of your own home. Please visit our Chapter's online calendar for monthly updates, such as guest speakers, new meetings and date changes.

Mark Your Calendar
 

It’s STEP- tember: Let’s cover 1800 miles in honor of 1800 families facing ALS

We are excited to introduce you to a brand new way to be a part of something BIG and to make a difference in the movement to defeat ALS. Join with the Golden West Chapter in using Challenge Hound, an awesome platform used by nonprofits and organizations for group challenges. Starting today through October 23 (Walk Day), as a registered Walker, you can dedicate every mile you walk to help raise awareness and support for 1800 families facing ALS that we serve!

We have set a goal to collectively cover 1800 miles in honor of the 1800 families facing ALS served by the Golden West Chapter. Whatever action you take, your efforts will help advocate for and empower our ALS community!

Whether you walk, roll, hike, dance, parade, or run, it all counts towards our 1800 mile goal. You can manually log your activity on Challenge Hound or connect your favorite activity app to automatically sync! Join the challenge today at Walk-tober.org!

Learn More
 

Thursday, September 9: Trach and Vent ALS Online Support Group


Please join us for our next Trach and Vent ALS Online Support Group on Thursday, September 9 at 1:30 PM PT/10:30 AM HT. Contact Care Manager, Robin Eller, RCP, at reller@alsagoldenwest.org for more information about how to participate.

Learn More
 

Saturday, September 11: ALS Families Raising Children Online Support Group

Join us for our next ALS Families Raising Children Online Support Group on Saturday, September 11 at 10:00 AM PT/7:00 AM HT. Cara Haggerty, Executive Director of Camp Hope Loves Company, will be speaking on their special program for the children of ALS families. Please contact Care Managers, Emma Karavardanyan, MA at ekaravardanyan@alsagoldenwest.org or Shannan Sonnicksen, LCSW, MPH at ssonnicksen@alsagoldenwest.org for more information about how to participate.

Learn More
 

Through September: Hawaii, it's time to Give Aloha!

Do you live in Hawaii and shop at Foodland? Then Give Aloha! During the month of September, make a donation at Foodland to support the Golden West Chapter - code #78813 - and Foodland and Western Union Foundation will match a portion of your donation. Remember to make a donation when you check out at your local Foodland during the month of September.

Watch This Video
 

Tuesday, September 14: All-Chapter Online Community Support Group

Join us for our next All-Chapter Online Community Support Group on Tuesday, September 14 at 1:30 PM PT/10:30 AM HT. Jennifer Webb, Program Manager for the HICAP program at the Valley Resource Center, will speak about Medicare changes and Medicare’s upcoming open enrollment in October. Please contact Care Managers, Robin Eller at reller@alsagoldenwest.org or Kathleen Kelsey at kkelsey@alsagoldenwest.org for more information about how to participate.

Learn More
 

Wednesday, September 15: Spanish Language ALS Online Support Group

Lo invitamos a unirse al grupo de Apoyo en Español. Cuándo: Miércoles, 15 septiembre 2021 04:00 p.m. Hora del pacífico/01:00 p.m. Hora de Hawaii. Por favor, comunicarse por correo electrónico a Debbie Joy djoy@alsagoldenwest.org para las instrucciones.

Please join us on Wednesday, September 15 at 4:00 PM PT/1:00 PM HT for our Spanish Language ALS Online Support Group. Contact Care Manager, Debbie Joy, at djoy@alsagoldenwest.org for more information about how to participate.  

Learn More
 

Saturday, September 18: Napa Valley Ride to Defeat ALS

Be a part of the nation’s largest single fundraiser in support of the ALS community at www.NapaValleyRide.org. Participate your own way from wherever you are in the world!

Join The Ultimate Century Challenge! During the entire month of September, Field Construction and their President, John Grcina, are rewarding the first 90 participants* who ride 100 miles and raise at least $100 with a matching donation of $100! Yes, indoor cycling (Peloton and Zwift) count as miles too!

Have questions? Reach out to us at ride@ridetodefeatALS.org.

*Must be a registered participant for the 2021 Napa Valley Ride to Defeat ALS to win. Register (for free) at NapaValleyRide.org

Register Today
 

Tuesday, September 21: Familial ALS Online Support Group

Join us on Tuesday, September 21 at 2:00 PM PT/11:00 AM HT for our Familial ALS Online Support Group. Please contact Care Manager, Cynthia Marks, RT, at cmarks@alsagoldenwest.org for more information about how to participate.

Learn More
 

Tuesday, September 21: LGBTQ+ ALS Online Support Group

Join us for our next LGBTQ+ ALS Online Support Group on Tuesday, September 21 at 1:00 PM PT/10:00 AM HT. All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Please contact Daniel Potapshyn, Care Manager at dpotapshyn@alsagoldenwest.org or Kim Lembo, Director of Community Outreach - Northern California at klembo@alsagoldenwest.org for more information about how to participate.

Learn More
 

Friday, September 24: San Francisco and Surrounding Counties ALS Support Group

Join us on Friday, September 24 at 1:00 PM PT/10:00 AM HT for our San Francisco and Surrounding Counties ALS Support Group. Special Guest Speaker: Certified Yoga Therapist Laura Nash, will be speaking on "Adaptive Yoga for ALS." Please contact Care Manager, Taheerah Mujahid, at tmujahid@alsagoldenwest.org for more information about how to participate.

Learn More
 

Thursday, September 30: ASK ME featuring Dr. Richard Bedlack

We invite you to our ASK ME educational webinar, “ALS Alternative Therapies, Cannabis and More” on Thursday, September 30, from 5:00pm - 6:00pm PT/2:00pm - 3:00pm HT featuring Richard S. Bedlack Jr., MD, PhD, MS, Professor of Neurology at Duke University School of Medicine. 

RSVP
 

Save the Date!

Saturday, October 23: Golden West Chapter Walk to Defeat ALS

We invite you to join us for the 2021 Golden West Chapter Walk to Defeat ALS! It’s the largest annual gathering of the ALS community, and a day dedicated to supporting families facing ALS and advancing the search for effective treatments and cures.

For the first time ever, teams and participants representing 31 California counties and the entire state of Hawaii will gather together for our Zoom start line, and in their homes and neighborhoods, on the same day to raise ALS awareness and funds, connect with the community, and celebrate loved ones in support of our vision: creating a world without ALS. Registered Team Captains and people with ALS will receive Walk Day Kits with ideas and fun supplies to help you “Walk Your Way!”

Sign up today for free at Walk-tober.org and walk, roll, hike, or participate your way!

¡Lo invitamos a unirse a nosotros en la Caminata del Capítulo Golden West 2021 para derrotar a ALS! Es la reunión anual más grande de la comunidad de ALS y será un día dedicado a apoyar a las familias que enfrentan ALS y avanzar en la búsqueda de tratamientos y curas efectivos.

Por primera vez en la historia, equipos y participantes que representan a 31 condados de California y todo el estado de Hawái se reunirán, en línea y en sus hogares y vecindarios, el mismo día para crear conciencia y recaudar fondos para la ALS, conectarse con la comunidad y celebrar a los seres queridos. Los que apoyan nuestra visión: crear un mundo sin ALS, los capitanes de equipo registrados y las personas con ALS recibirán kits del día de caminata con ideas y suministros divertidos para ayudarlo a "¡Camine a su manera!"

¡Regístrese hoy gratis en Walk-tober.org y camine, ruede, haga caminata o participe a su manera!

 

Through December 31: Walk to Defeat ALS Auction Baskets!

This year we are inviting YOU to create an auction basket representing your favorite things to help fundraise for the Golden West Chapter Walk to Defeat ALS!

Here is how you can participate!

1. Must be a registered Walk to Defeat ALS participant.

2. Submit an itemized list of items, a Fair Market value of the items, and a picture of  the basket to Walk@alsagoldenwest.org.

3. Your basket will then be added to our Auction page.

4. Bidding ends 12-31-2021.

5. Proceeds from your basket will be credited to your fundraising page or your Walk team

Questions? Contact us at  Walk@alsagoldenwest.org.

 

Save the Date!

Thursday, November 18: Champions for Cures and Care

Join us virtually for Champions for Cures and Care with James Beard Award-winning Chef Nancy Silverton and hosted by Billy Harris, on Thursday, November 18 at 6:00 pm PST/4:00 pm HST. It will be an inspirational and delectable evening to celebrate the ALS community and recognize extraordinary individuals and organizations whose heroic efforts are accelerating the search for effective treatments and cures for ALS.

Sponsors and ticket holders will savor tapas and libations delivered to their door from Chef Silverton’s Osteria Mozza. All guests will enjoy an exciting auction, musical and celebrity guests, and the presentation of the Golden West Chapter's highest honors, the Essey Awards.

For inquiries, please contact Asher Garfinkel, Vice President of Community Outreach at agarfinkel@alsagoldenwest.org or (323) 497-4830.

 

Monday, December 6: Petersen International Underwriters ALS Golf Classic

We invite you to join The ALS Association Golden West Chapter on Monday, December 6 as we follow the words of Lou Gehrig and "Swing away!” at the Petersen International Underwriters ALS Golf Classic. This year's tournament promises to be an exciting day for golfers of all ability levels. Each golf entry includes green fees, player gift packages, delicious food and drinks provided all day long, silent auction, and awards.

The safety of our players, volunteers, and staff is our #1 priority. We will utilize health and safety protocols, and follow guidelines provided by the country club, local authorities, and the CDC. Space is limited. For more information, to sponsor, or reserve your foursome now, please visit ALSGolfClassic.org or contact: Asher Garfinkel, VP of Community Outreach at agarfinkel@alsagoldenwest.org or (323) 497-4830. 

 

Ongoing: Run to Defeat ALS

Are you interested in participating in a local 5k, 10k, fun run, trail run, marathon, AND want to fundraise for the ALS community at the same time? Well, now you can! You pick the event, then register at RunALS.org, and we'll help you cross that finish line! For questions, send us an email at run@alsagoldenwest.org today.

 

Ongoing: Hike to Defeat ALS


Our Hike to Defeat ALS is an ongoing opportunity to hike your favorite trails while raising funds that directly support the Golden West Chapter's efforts to find effective treatments and cures for ALS. It is the perfect year-round event to show your support for the ALS community while enjoying the great outdoors! Register today (for FREE!) at HikeALS.org and #challengeALS! For questions, send us an email at hike@alsagoldenwest.org today.

 

Subscribe to our Calendar: Golden West Chapter Activities and Events


Did you know that you can subscribe to our online calendar that lists all of our Chapter activities and Events? It’s an easy way to stay connected and get involved with the ALS community, while raising ALS awareness and supporting Chapter care services and the search for effective treatments and cures for ALS. Find out more by pressing the “subscribe” link at the top of the calendar, or just select the activities and events that interest you most and save them to your personal calendar!

 

Special Thanks


 

Many Ways to Give!


 

Care Services


 

Research

 

Advocacy


 
 

In the News


Be sure to visit the newly updated "In the News" section of our website, which serves as an invaluable resource for both the ALS community and media professionals to receive timely updates about ALS and other important updates about the ALS community and the Golden West Chapter.

Watch/read these stories and other recent news below: