ALS Ice Bucket Challenge Progress
|
The ALS Association Golden West Chapter Announces a Compelling Online Campaign to Spread Awareness About Lou Gehrig’s Disease During ALS Awareness Month |
|
May 8, 2013 May is ALS Awareness Month, and The ALS Association Golden West Chapter is encouraging all Californians to participate in an exciting social media campaign designed to raise awareness about ALS. The theme of the campaign is “Create a world without ALS. Speak up now to give hope.” Participants are encouraged to visit www.alsagoldenwest.org where they can take any of three important actions in the campaign: (1) tell their own story about ALS; (2) read other people’s stories and share them; or (3) request more information about the disease. Through the easy-to-use “Tell Your Story” web tool, participants will be able to submit either a written or video story to express their personal hopes in the fight against ALS. Furthermore, by sharing these online stories, participants will actually be helping people living with ALS. Thanks to a partnership with Pride Mobility, the four ALS Association chapters nationwide that receive the most number of social media shares of their participants’ stories during May will earn a Quantum Q6 Edge power wheelchair (valued at $10,000 each) for their free “loan closets” – an essential program in which chapters provide durable medical equipment at no cost to people with ALS. As an example of how the campaign works, Fred Fisher, President and CEO of the Golden West Chapter, has posted his own story as well as a video entitled “The ALS Nation.” This poignant public awareness film features the personal testimonies of California State Senator Art Torres (Ret), Vice-Chair of the Governing Board, California Institute of Regenerative Medicine (CIRM) and Catherine Lomen-Hoerth, MD, PhD., Director of The ALS Treatment and Research Center at the University of California, San Francisco. Senator Torres and Dr. Lomen-Hoerth, along with the powerful voices of Lucia Bogatay, Tracy Carver, Matteo Chiari, Juri Kameda, Alex Sulyman, Cameron Ward, Kay and Philip Thomas who share their experiences with the disease and their commitment to find a cure. “It’s critical that people with ALS, and their loved ones, have an opportunity to voice their experiences about dealing with this devastating disease," said Fisher. "Hearing their moving and emotional stories helps spread awareness and ultimately engages more people in the fight to find treatments and a cure for Lou Gehrig’s Disease.” Increasing the number of online advocates in the fight against ALS is also an objective of this year’s social media campaign and will support the offline advocacy efforts of The ALS Association. Among these efforts is The ALS Association’s annual National ALS Advocacy Day and Public Policy Conference in Washington, D.C. on May 8-11. This important conference brings together nearly one thousand people with ALS, family members and other concerned individuals to advocate in person for policies designed to accelerate the development of treatments and eventually find a cure for this disease. For more information on ALS Awareness Month, please visit http://bit.ly/als-awareness-month
|
|
The ALS Association Golden West Chapter Announces a Compelling Online Campaign to Spread Awareness About Lou Gehrig’s Disease During ALS Awareness Month |
|
May 8, 2013 May is ALS Awareness Month, and The ALS Association Golden West Chapter is encouraging all Californians to participate in an exciting social media campaign designed to raise awareness about ALS. The theme of the campaign is “Create a world without ALS. Speak up now to give hope.” Participants are encouraged to visit www.alsagoldenwest.org where they can take any of three important actions in the campaign: (1) tell their own story about ALS; (2) read other people’s stories and share them; or (3) request more information about the disease. Through the easy-to-use “Tell Your Story” web tool, participants will be able to submit either a written or video story to express their personal hopes in the fight against ALS. Furthermore, by sharing these online stories, participants will actually be helping people living with ALS. Thanks to a partnership with Pride Mobility, the four ALS Association chapters nationwide that receive the most number of social media shares of their participants’ stories during May will earn a Quantum Q6 Edge power wheelchair (valued at $10,000 each) for their free “loan closets” – an essential program in which chapters provide durable medical equipment at no cost to people with ALS. As an example of how the campaign works, Fred Fisher, President and CEO of the Golden West Chapter, has posted his own story as well as a video entitled “The ALS Nation.” This poignant public awareness film features the personal testimonies of California State Senator Art Torres (Ret), Vice-Chair of the Governing Board, California Institute of Regenerative Medicine (CIRM) and Catherine Lomen-Hoerth, MD, PhD., Director of The ALS Treatment and Research Center at the University of California, San Francisco. Senator Torres and Dr. Lomen-Hoerth, along with the powerful voices of Lucia Bogatay, Tracy Carver, Matteo Chiari, Juri Kameda, Alex Sulyman, Cameron Ward, Kay and Philip Thomas who share their experiences with the disease and their commitment to find a cure. “It’s critical that people with ALS, and their loved ones, have an opportunity to voice their experiences about dealing with this devastating disease," said Fisher. "Hearing their moving and emotional stories helps spread awareness and ultimately engages more people in the fight to find treatments and a cure for Lou Gehrig’s Disease.” Increasing the number of online advocates in the fight against ALS is also an objective of this year’s social media campaign and will support the offline advocacy efforts of The ALS Association. Among these efforts is The ALS Association’s annual National ALS Advocacy Day and Public Policy Conference in Washington, D.C. on May 8-11. This important conference brings together nearly one thousand people with ALS, family members and other concerned individuals to advocate in person for policies designed to accelerate the development of treatments and eventually find a cure for this disease. For more information on ALS Awareness Month, please visit http://bit.ly/als-awareness-month
|
