Important Aspects in Clinical Care and Promising Developments in ALS Research Discussed at Special "Ask the Experts" Event
November 17, 2012- Los Angeles, California
Following the third annual California ALS Research Summit, The ALS
Association Golden West Chapter held a special "Ask the Experts"
event open to the public with ALS experts discussing important aspects of
clinical care and promising developments in ALS research. The program entittled "Living with ALS" offered people with Lou Gehrig's disease and their loved ones an opportunity to ask their
questions directly to scientists and clinicians. More than 100 people with
ALS and their families were in attendance, through the invitation of The ALS
Association Golden West Chapter. Many traveled long distances to be at the
Cedar-Sinai Medical Center campus for this event in person. Others watched via
live webcast and chatted in their questions and words of appreciation.
Speakers included Catherine Lomen-Hoerth, M.D., Ph.D., Director, The ALS Center
at UCSF, who discussed multidisciplinary care and ALS, along with The ALS
Association’s Chief Scientist, Lucie Bruijn, Ph.D., who presented an overview
of ALS research. Other presenters included Robert H. Baloh, M.D., Ph.D.,
Director, Cedars-Sinai ALS Center, Don W. Cleveland, Ph.D., Department Chair,
UCSD, and Clive Svendsen, Ph.D., Director, Cedars-Sinai RMI and Chair of the
California ALS Research Network who spoke about topics such as clinical trials,
genetics, and stem cell research.
“I would like to continue this model for future California ALS Research
Summits,” said Svendsen, who also serves as the Chair of the California ALS
Research Network. “Knowing that we will be rotating the Summit location each
year will enable us to access different patient groups in different geographic
areas. I am very committed to presenting this emerging science directly to
people with ALS and their families. It is essential to those who are
holding on through this disease and relating their clinical experience to
us. The scientists are very indebted to the ALS community and enjoy the
opportunity to talk one-on-one with them,” he said.
To view photos from the event, please visit our flickr site.
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List of Presentations and Presentors (please click on link for a downloadable version of the materials)
Important Aspects in Clinical Care
Multidisciplinary Care and ALS Catherine Lomen-Hoerth, MD, PhD, Director, The ALS Center at UCSF
Communicating with ALS Ilyssa Abaranok, M.S. CCC-SLP, AAC Specialist, The ALS Association Golden West Chapter
Meeting Your Mobility Needs David Beals, ATP and Brett Zaer, ATP, Superior Mobility
Research Developments
Overview of ALS Research (presentation coming soon) Lucie Bruijn, PhD, Chief Scientist, The ALS Association
Genetics of ALS Robert H Baloh, MD, PhD, Director, Cedars-Sinai ALS Center
Novel Approaches, Therapies, and Genes Don W. Cleveland, PhD, Departmental Chair of Cellular and Molecular Medicine, UCSD
Stem Cells and ALS Clive Svendsen, PhD, Director, Cedars-Sinai RMI
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If you have questions for the presenters, please send them to asktheexperts@alsagoldenwest.org
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