The ALS Association Golden West Chapter - Proudly Serving 31 Counties throughout California
Important Aspects in Clinical Care and Promising Developments in ALS Research Discussed at Special "Ask the Experts" Event
Following the third annual California ALS Research Summit, The ALS
Association Golden West Chapter held a special "Ask the Experts"
event open to the public with ALS experts discussing important aspects of
clinical care and promising developments in ALS research. The program entittled "Living with ALS" offered people with Lou Gehrig's disease and their loved ones an opportunity to ask their
questions directly to scientists and clinicians. More than 100 people with
ALS and their families were in attendance, through the invitation of The ALS
Association Golden West Chapter. Many traveled long distances to be at the
Cedar-Sinai Medical Center campus for this event in person. Others watched via
live webcast and chatted in their questions and words of appreciation.
“I would like to continue this model for future California ALS Research Summits,” said Svendsen, who also serves as the Chair of the California ALS Research Network. “Knowing that we will be rotating the Summit location each year will enable us to access different patient groups in different geographic areas. I am very committed to presenting this emerging science directly to people with ALS and their families. It is essential to those who are holding on through this disease and relating their clinical experience to us. The scientists are very indebted to the ALS community and enjoy the opportunity to talk one-on-one with them,” he said.