A message from …. Charlie and Angie Wren
Hope recognizes no barriers in the search for effective treatments and cures for ALS
I grew up and currently live in a small farm town. My wife, Angie, and I have known each other since the first or second grade when we went to school together. As adults, we reconnected over social media and got married 12 years ago. When we married, I told Angie I was going to make life interesting. We have shared many fun and wonderful times together with family and friends.
In July 2015, I realized something was wrong when I had this uncontrollable twitching in my shoulders. The neurologist told me that this was probably ALS and that I was going to have to put my affairs in order. We didn’t have any prior understanding or know anything about ALS. What we learned is that ALS can happen to your loved one at any moment.
I saw someone recreate the acronym for ALS to be, “Always Losing Something.” It’s not fair, and it needs to be stopped, so it doesn’t happen to anyone else. It’s extremely important that the public gets involved in the fight to defeat ALS because education, research, money and time will determine when there are effective treatments and cures for ALS.
Angie and I feel that it’s important to be a part of something that is bigger than us. An interesting opportunity presented itself when we were asked to be part of a documentary with PBS about ALS. We are also sharing our story in other ways, like through the Golden West Chapter Walk to Defeat ALS. With both of these projects, it has been our goal to raise ALS awareness broadly and support for every person affected by ALS.
As you may know, November is National Family Caregivers Month. In addition to providing vital support to people living with ALS, the Golden West Chapter offers many programs, resources, and services for family caregivers to help with the daily challenges they may experience. When you support the mission of the Golden West Chapter, your gift directly helps caregivers and people facing ALS by funding the Golden West Chapter’s Wraparound Model of Care, which includes expert community and clinic-based Care Services, loans of essential equipment, support groups and more provided free-of-charge to more than 1,800 families facing ALS each year.
Thank you for your strong support of the ALS community. Individually, we are only a drop of water but together we are an ocean. I believe that hope recognizes no barriers. It jumps all hurdles, leaps all fences and tears down impenetrable walls to arrive at its final destination which, is to live each day to the fullest and to find effective treatments and cures for ALS.
Living with ALS since 2015
Walk to Defeat ALS Team Captain, "Charlie's Angels"
It is only together that we will defeat ALS.
All proceeds from the Walk to Defeat ALS will provide critical funding for the
Golden West Chapter's urgent, interdependent mission priorities
in ALS care services, public policy initiatives, and cutting-edge global research.