ALS Ice Bucket Challenge Progress
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NEWS RELEASE |
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Community invited to free concert Rocking Out ALS
on Thursday, June 24 to support the search for treatments and cures for ALS
The ALS Association Golden West Chapter proudly announces the first-ever Rocking Out ALS virtual concert on Thursday, June 24, 2021. This one-day community outreach event is free and open to the public, and will feature music from notable performers such as Rick Springfield, Jake Shimabukuro, Dan Navarro, LUCE, Will Thoren, The Atomic Punks, The Coolies, Jeffrey Halford, Dirty Cello, and Skip The Needle, as well as a special message from Trevor Jackson. Participants are invited to enjoy these featured artists from around the globe, rocking their music in support of the interdependent mission priorities of The ALS Association Golden West Chapter and the ALS community. The event will also include an online silent auction as well as stories from families living with ALS.
Amyotrophic lateral sclerosis (ALS) is a fatal, neurodegenerative disease that attacks nerve cells in the brain and spinal cord. It is also known as Lou Gehrig’s Disease, for the beloved and world-renowned New York Yankee. More recently, it took the lives of beloved NFL 49er Dwight Clark, playwright Sam Shepard, and Stephen Hawking, the internationally celebrated physicist, cosmologist, and author.
“I have been living with ALS since March 2000. Music has always been and continues to be an important part of my life,” shared Matt Chaney, Chapter Advisory Trustee. ”My first symptom was weakness of the muscle in between my thumb and index finger. Interestingly, this occurred while I was playing my guitar.”
ALS does not discriminate -- women and men of all ages and backgrounds are at risk. People with ALS lose their ability to move, speak, swallow, and eventually to breathe, while all five senses continue to function normally. Those who have served in the military are at twice the risk of developing ALS as the general population. Managing the progression of the disease is emotionally, physically and financially draining on families. Currently, there is no known cure.
“I’m in here in honor of my friend, Nanci Ryder, who suffered from this horrible disease,” shared Soul Train Award-winner musician, Trevor Jackson, of Grownish.
“My sister, Kim Shattuck of The Muffs and The Coolies, lost her battle with ALS in 2019, but she stayed feisty until the very end,” said Kristen Shattuck, who is the team captain for “Team Shattuck” for the Golden West Chapter’s Walk to Defeat ALS. “She was an amazing sister, musician, and friend and is remembered by so many.”
Scientists are closer than ever before to effective treatments and cures for this devastating disease. Many researchers believe that unlocking the mysteries about ALS would also help millions of people suffering from other neurodegenerative diseases, like Alzheimer’s, Huntington’s, Parkinson’s, frontal-temporal dementia, and more.
Streaming will begin at 6:00pm PDT / 3:00pm HST with award-winning comedian, Joe Dungan and Sheri Strah, COO of the Golden West Chapter as the evening’s emcees. Interested parties can visit RockingOutALS.org to see the full lineup, RSVP and begin bidding in the silent auction (now open).
Rocking Out ALS is proudly sponsored by Mountain Music. For questions, please contact Kim Lembo, Director of Community Outreach, Northern California at klembo@alsagoldenwest.org, 510-338-7895.
“We are so grateful to all the musicians and families facing ALS for sharing their experiences with us as partners in this inaugural community event,” said Sheri Strahl, Chief Operating Officer of the Golden West Chapter. “The Golden West Chapter is relentless in the pursuit of effective treatments and cures. We are always working to be the go-to resource for information and support for the ALS community.”
About the Golden West Chapter of The ALS Association
The mission of The ALS Association is to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Our vision is to create a world without ALS. The Golden West Chapter serves people with ALS and their families in 31 counties throughout California and in the state of Hawaii. Everything we do advances the search for effective treatments and cures for ALS. For more information about The ALS Association Golden West Chapter, please visit us at www.alsagoldenwest.org or email us at info@alsagoldenwest.org.
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|
NEWS RELEASE |
|
|
Community invited to free concert Rocking Out ALS
on Thursday, June 24 to support the search for treatments and cures for ALS
The ALS Association Golden West Chapter proudly announces the first-ever Rocking Out ALS virtual concert on Thursday, June 24, 2021. This one-day community outreach event is free and open to the public, and will feature music from notable performers such as Rick Springfield, Jake Shimabukuro, Dan Navarro, LUCE, Will Thoren, The Atomic Punks, The Coolies, Jeffrey Halford, Dirty Cello, and Skip The Needle, as well as a special message from Trevor Jackson. Participants are invited to enjoy these featured artists from around the globe, rocking their music in support of the interdependent mission priorities of The ALS Association Golden West Chapter and the ALS community. The event will also include an online silent auction as well as stories from families living with ALS.
Amyotrophic lateral sclerosis (ALS) is a fatal, neurodegenerative disease that attacks nerve cells in the brain and spinal cord. It is also known as Lou Gehrig’s Disease, for the beloved and world-renowned New York Yankee. More recently, it took the lives of beloved NFL 49er Dwight Clark, playwright Sam Shepard, and Stephen Hawking, the internationally celebrated physicist, cosmologist, and author.
“I have been living with ALS since March 2000. Music has always been and continues to be an important part of my life,” shared Matt Chaney, Chapter Advisory Trustee. ”My first symptom was weakness of the muscle in between my thumb and index finger. Interestingly, this occurred while I was playing my guitar.”
ALS does not discriminate -- women and men of all ages and backgrounds are at risk. People with ALS lose their ability to move, speak, swallow, and eventually to breathe, while all five senses continue to function normally. Those who have served in the military are at twice the risk of developing ALS as the general population. Managing the progression of the disease is emotionally, physically and financially draining on families. Currently, there is no known cure.
“I’m in here in honor of my friend, Nanci Ryder, who suffered from this horrible disease,” shared Soul Train Award-winner musician, Trevor Jackson, of Grownish.
“My sister, Kim Shattuck of The Muffs and The Coolies, lost her battle with ALS in 2019, but she stayed feisty until the very end,” said Kristen Shattuck, who is the team captain for “Team Shattuck” for the Golden West Chapter’s Walk to Defeat ALS. “She was an amazing sister, musician, and friend and is remembered by so many.”
Scientists are closer than ever before to effective treatments and cures for this devastating disease. Many researchers believe that unlocking the mysteries about ALS would also help millions of people suffering from other neurodegenerative diseases, like Alzheimer’s, Huntington’s, Parkinson’s, frontal-temporal dementia, and more.
Streaming will begin at 6:00pm PDT / 3:00pm HST with award-winning comedian, Joe Dungan and Sheri Strah, COO of the Golden West Chapter as the evening’s emcees. Interested parties can visit RockingOutALS.org to see the full lineup, RSVP and begin bidding in the silent auction (now open).
Rocking Out ALS is proudly sponsored by Mountain Music. For questions, please contact Kim Lembo, Director of Community Outreach, Northern California at klembo@alsagoldenwest.org, 510-338-7895.
“We are so grateful to all the musicians and families facing ALS for sharing their experiences with us as partners in this inaugural community event,” said Sheri Strahl, Chief Operating Officer of the Golden West Chapter. “The Golden West Chapter is relentless in the pursuit of effective treatments and cures. We are always working to be the go-to resource for information and support for the ALS community.”
About the Golden West Chapter of The ALS Association
The mission of The ALS Association is to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Our vision is to create a world without ALS. The Golden West Chapter serves people with ALS and their families in 31 counties throughout California and in the state of Hawaii. Everything we do advances the search for effective treatments and cures for ALS. For more information about The ALS Association Golden West Chapter, please visit us at www.alsagoldenwest.org or email us at info@alsagoldenwest.org.
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