ALS Ice Bucket Challenge Progress
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The ALS Association Goldenwest Chapter (415) 967-2772 media@alsagoldenwest.org |
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Community Invited to Join the Fight Against ALS on Saturday, June 1, 2019
at the 7th Annual Sonoma County Walk to Defeat ALS®
4/22/2019 - Sonoma, CA
The ALS Association Golden West Chapter is returning to Rohnert Park for the 7th annual Sonoma County Walk to Defeat ALS® on Saturday, June 1 at Sonoma State University. We invite the community to join us for family-friendly day in celebration of people living with ALS and their loved ones and in memory of those lost to this devastating disease.
Registration opens at 11:00 am, opening ceremony kicks off at 12:00 pm, and the walk steps off at 1:00 pm. The one and a half-mile walk starts and ends at the Sonoma State Arbor and Lakes, wrapping around the university. The festival zone will include a Zumba® warm up dance, Kids Zone, a resource expo, giveaways, and box lunch. This special community event is open to the public and all funds raised support the interdependent mission priorities of The ALS Association Golden West Chapter in care services, public policy, and research.
Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is a fatal, neurodegenerative disease that attacks nerve cells in the brain and spinal cord. ALS is not contagious and does not discriminate – it affects men and women of all ages, ethnic backgrounds, and socioeconomic communities around the world. For unknown reasons, military veterans are diagnosed with ALS nearly twice as often as the general population. People with ALS lose their ability to move, speak, swallow, and eventually the ability to breathe, while all five senses typically continue to function normally. The average life expectancy of a person with ALS is two to five years from diagnosis. Currently, there are only two drugs approved by the U.S. Food and Drug Administration (FDA) to treat ALS, which only extend life by a few months. At this time, there is no known cure.
This year, the Sonoma County Walk is amplifying its awareness through a partnership with Free Will Productions. William “DJ Will-Power” Daye III will be providing entertainment, as the team Mike’s Movers walks in honor of Daye’s father-in-law, Mike Ware. “Mike Ware, we walk today to help you let go of what you think your life should look like, and to celebrate you and everything your life is, and all those lives you've impacted. We love you, Dad - Your Team, Mike’s Movers.” Mike’s Movers will be among other families walking in honor of their loved one, as well as a number of teams walking to commemorate the memory of those they’ve lost to ALS.
The mission of The ALS Association Golden West Chapter is to discover effective treatments and cures for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Our vision is to create a world without ALS. The Golden West Chapter serves people with ALS and their families in 31 counties throughout California and in the state of Hawaii. Everything we do advances the search for effective treatments and cures for ALS. The Chapter is partnered with and supports over 22 multidisciplinary ALS centers and clinics, including satellite clinics held in Modesto, Monterey, and Santa Rosa. We provide compassionate care services to families facing ALS - free of charge - which include professional, regional care managers to help individuals and families access the best information, resources, equipment, and experts to maintain and maximize health, independence, communication, mobility, safety, and quality of life. We also offer support groups throughout our service area which provide practical solutions for everyday challenges and connection with others who are living with ALS.
For more information about ALS, or to register, fundraise for, or donate to the Sonoma County Walk, please visit our website at www.SonomaCountyWalktoDefeatALS.org or www.alsagoldenwest.org. You can also contact Megan Fisher, Community Outreach Assistant (510) 251-2572 or mfisher@alsagoldenwest.org.
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The ALS Association Goldenwest Chapter (415) 967-2772 media@alsagoldenwest.org |
|
|
Community Invited to Join the Fight Against ALS on Saturday, June 1, 2019
at the 7th Annual Sonoma County Walk to Defeat ALS®
4/22/2019 - Sonoma, CA
The ALS Association Golden West Chapter is returning to Rohnert Park for the 7th annual Sonoma County Walk to Defeat ALS® on Saturday, June 1 at Sonoma State University. We invite the community to join us for family-friendly day in celebration of people living with ALS and their loved ones and in memory of those lost to this devastating disease.
Registration opens at 11:00 am, opening ceremony kicks off at 12:00 pm, and the walk steps off at 1:00 pm. The one and a half-mile walk starts and ends at the Sonoma State Arbor and Lakes, wrapping around the university. The festival zone will include a Zumba® warm up dance, Kids Zone, a resource expo, giveaways, and box lunch. This special community event is open to the public and all funds raised support the interdependent mission priorities of The ALS Association Golden West Chapter in care services, public policy, and research.
Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is a fatal, neurodegenerative disease that attacks nerve cells in the brain and spinal cord. ALS is not contagious and does not discriminate – it affects men and women of all ages, ethnic backgrounds, and socioeconomic communities around the world. For unknown reasons, military veterans are diagnosed with ALS nearly twice as often as the general population. People with ALS lose their ability to move, speak, swallow, and eventually the ability to breathe, while all five senses typically continue to function normally. The average life expectancy of a person with ALS is two to five years from diagnosis. Currently, there are only two drugs approved by the U.S. Food and Drug Administration (FDA) to treat ALS, which only extend life by a few months. At this time, there is no known cure.
This year, the Sonoma County Walk is amplifying its awareness through a partnership with Free Will Productions. William “DJ Will-Power” Daye III will be providing entertainment, as the team Mike’s Movers walks in honor of Daye’s father-in-law, Mike Ware. “Mike Ware, we walk today to help you let go of what you think your life should look like, and to celebrate you and everything your life is, and all those lives you've impacted. We love you, Dad - Your Team, Mike’s Movers.” Mike’s Movers will be among other families walking in honor of their loved one, as well as a number of teams walking to commemorate the memory of those they’ve lost to ALS.
The mission of The ALS Association Golden West Chapter is to discover effective treatments and cures for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Our vision is to create a world without ALS. The Golden West Chapter serves people with ALS and their families in 31 counties throughout California and in the state of Hawaii. Everything we do advances the search for effective treatments and cures for ALS. The Chapter is partnered with and supports over 22 multidisciplinary ALS centers and clinics, including satellite clinics held in Modesto, Monterey, and Santa Rosa. We provide compassionate care services to families facing ALS - free of charge - which include professional, regional care managers to help individuals and families access the best information, resources, equipment, and experts to maintain and maximize health, independence, communication, mobility, safety, and quality of life. We also offer support groups throughout our service area which provide practical solutions for everyday challenges and connection with others who are living with ALS.
For more information about ALS, or to register, fundraise for, or donate to the Sonoma County Walk, please visit our website at www.SonomaCountyWalktoDefeatALS.org or www.alsagoldenwest.org. You can also contact Megan Fisher, Community Outreach Assistant (510) 251-2572 or mfisher@alsagoldenwest.org.
