ALS Ice Bucket Challenge Progress
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The ALS Association Goldenwest Chapter (415) 967-2772 media@alsagoldenwest.org |
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Community is invited to help raise awareness and support for the ALS community served by The ALS Association Golden West Chapter at Eat to Defeat ALS on Friday, May 17
5/03/2019 - Monterey, CA
The ALS Association Golden West Chapter invites the community to the inaugural Eat to Defeat ALS fundraiser at the Moose Lodge in Del Rey Oaks on Friday, May 17, 2019. This event was conceived by Woodbridge High School senior, Connor Cohan, who was inspired by his cousin, Ryan Farnsworth, who died of ALS at the age of 32 in February 2019.
“My family and I have been involved in the fight against ALS since 2016, when Ryan was diagnosed,” shared Connor Cohan. “I decided to start this event because I don't want anyone to go through what me and my family went through when we lost Ryan. Ryan was such an inspiration to everyone he was around, and watching him fight ALS was one of the hardest things I had to watch in my life, so I knew I had to do something to help.”
Doors open at 6:00 pm, with dinner and programing scheduled to run until 8:30 pm. Diners can expect a delicious, chicken barbeque meal (vegetarian options available upon request), prepared by The Spaghetti Hill Gang. The night’s entertainment included with dinner is the opportunity to vote for your meal’s concierge server as the “Best Server In the World,” a silent auction and the grand “Big Raffle.” Tickets are $30 per person and can be purchased over the phone at (831) 869-7850 or online https://eattodefeatals.wixsite.com/eattodefeatals. This special community event is open to the public and all funds raised benefit the interdependent mission priorities of The ALS Association Golden West Chapter in care services, public policy, and research.
Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is a fatal, neurodegenerative disease that attacks nerve cells in the brain and spinal cord. ALS is not contagious and does not discriminate – it affects men and women of all ages, ethnic backgrounds, and socioeconomic communities around the world. For unknown reasons, military veterans are diagnosed with ALS nearly twice as often as the general population. People with ALS lose their ability to move, speak, swallow, and eventually the ability to breathe, while all five senses typically continue to function normally. The average life expectancy of a person with ALS is two to five years from diagnosis. Currently, there are only two drugs approved by the U.S. Food and Drug Administration (FDA) to treat ALS, which only extend life by a few months. At this time, there is no known cure.
Proceeds from Eat to Defeat ALS will benefit the fundraising efforts of “Team Ryan” and the 7th Annual Sonoma County Walk to Defeat ALS. On Saturday, June 1, Cohan and his relatives will join together at Sonoma State University for the Sonoma County Walk, and walk alongside other families who have been affected by ALS. There, Cohan will be awarded as the 2019 Inaugural Youth Honoree for his trailblazing work in raising awareness and support for the ALS community.
The mission of The ALS Association Golden West Chapter is to discover effective treatments and cures for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Our vision is to create a world without ALS. The Golden West Chapter serves people with ALS and their families in 31 counties throughout California and in the state of Hawaii. Everything we do advances the search for effective treatments and cures for ALS. The Chapter is partnered with and supports over 22 multidisciplinary ALS centers and clinics, including satellite clinics held in Modesto, Monterey, and Santa Rosa. We provide compassionate care services to families facing ALS - free of charge - which include professional, regional care managers to help individuals and families access the best information, resources, equipment, and experts to maintain and maximize health, independence, communication, mobility, safety, and quality of life. We also offer support groups throughout our service area which provide practical solutions for everyday challenges and connection with others who are living with ALS.
For more information about ALS or to register, fundraise for, or donate to the Sonoma County Walk, please visit the website at www.SonomaCountyWalktoDefeatALS.org or www.alsagoldenwest.org. You can also contact Megan Fisher, Community Outreach Assistant (510) 251-2572 or mfisher@alsagoldenwest.org.
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The ALS Association Goldenwest Chapter (415) 967-2772 media@alsagoldenwest.org |
|
|
Community is invited to help raise awareness and support for the ALS community served by The ALS Association Golden West Chapter at Eat to Defeat ALS on Friday, May 17
5/03/2019 - Monterey, CA
The ALS Association Golden West Chapter invites the community to the inaugural Eat to Defeat ALS fundraiser at the Moose Lodge in Del Rey Oaks on Friday, May 17, 2019. This event was conceived by Woodbridge High School senior, Connor Cohan, who was inspired by his cousin, Ryan Farnsworth, who died of ALS at the age of 32 in February 2019.
“My family and I have been involved in the fight against ALS since 2016, when Ryan was diagnosed,” shared Connor Cohan. “I decided to start this event because I don't want anyone to go through what me and my family went through when we lost Ryan. Ryan was such an inspiration to everyone he was around, and watching him fight ALS was one of the hardest things I had to watch in my life, so I knew I had to do something to help.”
Doors open at 6:00 pm, with dinner and programing scheduled to run until 8:30 pm. Diners can expect a delicious, chicken barbeque meal (vegetarian options available upon request), prepared by The Spaghetti Hill Gang. The night’s entertainment included with dinner is the opportunity to vote for your meal’s concierge server as the “Best Server In the World,” a silent auction and the grand “Big Raffle.” Tickets are $30 per person and can be purchased over the phone at (831) 869-7850 or online https://eattodefeatals.wixsite.com/eattodefeatals. This special community event is open to the public and all funds raised benefit the interdependent mission priorities of The ALS Association Golden West Chapter in care services, public policy, and research.
Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is a fatal, neurodegenerative disease that attacks nerve cells in the brain and spinal cord. ALS is not contagious and does not discriminate – it affects men and women of all ages, ethnic backgrounds, and socioeconomic communities around the world. For unknown reasons, military veterans are diagnosed with ALS nearly twice as often as the general population. People with ALS lose their ability to move, speak, swallow, and eventually the ability to breathe, while all five senses typically continue to function normally. The average life expectancy of a person with ALS is two to five years from diagnosis. Currently, there are only two drugs approved by the U.S. Food and Drug Administration (FDA) to treat ALS, which only extend life by a few months. At this time, there is no known cure.
Proceeds from Eat to Defeat ALS will benefit the fundraising efforts of “Team Ryan” and the 7th Annual Sonoma County Walk to Defeat ALS. On Saturday, June 1, Cohan and his relatives will join together at Sonoma State University for the Sonoma County Walk, and walk alongside other families who have been affected by ALS. There, Cohan will be awarded as the 2019 Inaugural Youth Honoree for his trailblazing work in raising awareness and support for the ALS community.
The mission of The ALS Association Golden West Chapter is to discover effective treatments and cures for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Our vision is to create a world without ALS. The Golden West Chapter serves people with ALS and their families in 31 counties throughout California and in the state of Hawaii. Everything we do advances the search for effective treatments and cures for ALS. The Chapter is partnered with and supports over 22 multidisciplinary ALS centers and clinics, including satellite clinics held in Modesto, Monterey, and Santa Rosa. We provide compassionate care services to families facing ALS - free of charge - which include professional, regional care managers to help individuals and families access the best information, resources, equipment, and experts to maintain and maximize health, independence, communication, mobility, safety, and quality of life. We also offer support groups throughout our service area which provide practical solutions for everyday challenges and connection with others who are living with ALS.
For more information about ALS or to register, fundraise for, or donate to the Sonoma County Walk, please visit the website at www.SonomaCountyWalktoDefeatALS.org or www.alsagoldenwest.org. You can also contact Megan Fisher, Community Outreach Assistant (510) 251-2572 or mfisher@alsagoldenwest.org.
