ALS Ice Bucket Challenge Progress
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The Golden West Chapter’s team of professional Care Managers provide expert advice and assistance for people living with ALS, free of charge.

Each person with ALS who registers with the Golden West Chapter is connected to a professional Regional Care Manager with extensive knowledge of ALS and local resources. Our compassionate Care Managers are available to help maximize health, independence, mobility, safety and communication.

Through virtual and in-person home visits, phone calls, e-mails and collaboration with ALS Multidisciplinary Clinics teams and medical providers, Care Managers are able to:

  • Help families navigate common challenges of living with ALS

  • Guide families through their health insurance and government benefits

  • Facilitate durable medical equipment loans

  • Demonstrate low tech, adaptive technology for improved communication

  • Facilitate demonstrations of equipment through local vendors for improving safety, mobility, and independence

  • Help families implement recommendations from medical professionals

  • Find and access local resources, including topic specific support groups

  • Provide the most up-to-date and accurate information about ALS and all Chapter programs and events, including educational webinars

  • Provide information and resources on ALS research, including assistance in locating specific relevant ALS clinical trials

  • Connect people to opportunities to engage in federal and state legislative advocacy efforts on behalf of the ALS community

Regional Care Manager Daniel Potapshyn with Judy and Olin Leasher of Santa Rosa at a Clinic visit.
“We feel extremely fortunate to have the support from our Golden West Chapter Care Manager. His encouragement, inspiration, knowledge, sharing and support are a few of the much-appreciated benefits.“ Judy.

Contact us now to register with the Golden West Chapter and begin receiving free, personalized services. You will be partnered with a care manager who will work with you to determine your current and future needs. Studies show that people with ALS who receive comprehensive care that is tailored to individual needs often experience an increased quality of life.

Our office is open Monday through Friday. Please contact us at 1-866-750-2572 or email us at careservices@alsagoldenwest.org.

Please use the left side navigation links to find information about ALS and additional care services tools and resources we offer. You may also view our Affiliated Multidisciplinary ALS Clinics and Centers of Excellence here.