Speakers and topics included:
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Pamela Jacobson, MS, CCC-SLP, MBA Vice President of Program Services The ALS Association Golden West Chapter
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The Human Side of Facing ALS/Practical Tips Scott Miller, MD, Chief, Department of Neurology, Kaiser Permanente South Bay Medical Director, Kaiser Permanente South Bay ALS Clinic
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Guided Meditation/The Importance of Using Your Social Worker Julie Ziegler, LCSW, Medical Social Worker Kaiser Permanente South Bay
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Managing Your Care Barbara Myers, RN, ALS Case Manager Department of Neurology, Kaiser Permanente South Bay
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Cognitive Impairment in ALS Patients Nasheed Jamal, MD Director, ALS Multidisciplinary Clinic Associate Chief of Neurology, Greater Los Angeles VA Healthcare System
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Navigating the Clinical Trial Landscape Peggy Allred, Research Program Administrator, Neuromuscular Program Manager, Cedars-Sinai Medical Center
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Updates from the California ALS Research Summit and the winners of the inaugural Barber ALS Research Award Clive Svendsen, PhD. Chair, California ALS Research Summit Director; Regenerative Medicine Institute, Cedars-Sinai Medical Center
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Updates from The ALS Association's Research Program Lucie Bruijn, PhD, MBA, Chief Scientist, The ALS Association
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ALS Clinical Trial Update and Challenges Jeffrey Rosenfeld, PhD, MD, FAAN Director, Neuromuscular ALS/MND Programs Loma Linda University School of Medicine
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Stem Cells and ALS Larry Goldstein, PhD Director, UC San Diego Stem Cell Program
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Using Stem Cells to Discover New Treatments Justin Ichida, PhD, Assistant Professor. Stem Cell & Regenerative Medicine University of Southern California
Speakers included:
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Speakers and topics included:
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How do we navigate complex waters? John Ravits, MD, UCSD
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ALS Clinical Research Overview, Resources, and Current Studies Sahana Malik, Clinical Research Coordinator
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Communication and Swallowing Management with ALS Lindsey Schaefer, MS, CCC-SLP
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Inside the ALS Clinic Susie Morrell, RN
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Nutrition Care for ALS Cayleigh Mackay, RD
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Respiratory Care in ALS Garner Faulkner II, BSRC, RRT, AE-C
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Maximizing Independent Living Kim Bond, OTR/L, ATP, CLT Occupational Therapist
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External and Internal Resources Debbie Wais, LCSW, Clinical Social Worker
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Attaining Benefits for Qualified Veterans Captain Robert Kamei National Service Officer, Paralyzed Veterans of America
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Equipment Loan Closet/Extended Network of Resources Renee Buel, Care Services Manager, The ALS Association Greater San Diego Chapter
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Barbara Newhouse President & CEO The ALS Association
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Outcomes from the 6th Annual California ALS Research Summit Clive Svendsen, PhD Chair of the California ALS Research Network Chair at RMI, Cedars-Sinai
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Stem Cells/iPS Ashkan Javaherian, PhD Gladstone Institutes
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Upper Motor Neurons and ALS Gretchen Thomsen, PhD Cedars-Sinai
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Origins of ALS John Ravits, MD, UCSD
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Updates from The ALS Association and TREAT ALS Lucie Bruijn, PhD, MBA, Chief Scientist,The ALS Association
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Speakers and topics included:
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Brandon K. Hirota, MD, Neurology Associates
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Multidisciplinary Care & ALS Richard A. Lewis, MD, Director, Center for ALS Care at Cedars Sinai Medical Center
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Latest in ALS Clinical Trials Stacy A. Rudnicki, MD, Director, ALS Center, University of Arkansas for Medical Sciences
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Update on the National ALS Registry Steve Gibson. Chief Mission Strategy & Public Policy Officer, The ALS Association
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Fred Fisher, MSW, LCSW, President & CEO,
The ALS Association Golden West Chapter
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Speakers included:
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Justin Ichida, PhD, USC Stem Cell
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Fred Fisher, MSW, LCSW, President &
CEO, The ALS Association
Golden West Chapter
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Speakers and topics included:
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Multidisciplinary Care for ALS and ALS-FTD Catherine Lomen-Hoerth, MD, PhD, Professor, University of California, San Francisco
Director, The ALS Treatment and Research Center
University of California, San Francisco
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7 Components of a Highly Effective Communication System Amy Roman, MS, CCC, SLP
Director, AAC Loan Library, Golden West Chapter
AAC Specialist, Forbes Norris ALS Center, CPMC
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7 Best Ways to Maintain Lung Health in ALS Lee Guion MA, RRT, FAARC
Neurorespiratory Clinical Specialist,
Forbes Norris ALS Center, CPMC
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An update on exercise for people with ALS:Why, when, and how? Andrew Lui, PT, DPT
Associate Professor, University of California, San Francisco Physical Therapist, The ALS Center at UCSF
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A+ Nutrition for ALS David Besio, MS, RD
Clinical Dietitian,
The ALS Center at UCSF and Forbes Norris ALS Center, CPMC
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Clive Svendsen, PhD
Director, RMI, Cedars-Sinai Medical Center
Chair, California ALS Research Network
Investigator, Neuro Collaborative Research Initiative
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Don W. Cleveland, PhD Chair, Cellular and Molecular Medicine, UCSD
Member, Ludwig Institute for Cancer Research
Member, California ALS Research Network
Investigator, Neuro Collaborative Research Initiative
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Steven Finkbeiner, MD, PhD
Associate Director, Gladstone Institutes
Member, California ALS Research Network
Investigator, Neuro Collaborative Research Initiative
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Lucie Bruijn, PhD, MBA
Chief Scientist, The ALS Association
Member, California ALS Research Network
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Speakers and topics included:
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Current Research and Treatment Advances: A State of the Art- Jeffrey Rosenfeld PhD, MD, FAAN, Chief of Neurology UCSF-Fresno
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Treating Motor Neuron Disease: Hopeful Alternatives from Head to Toe Erin Singleton SLP, Irvin Marquez RRT, Claire Dias RD, Will Freeman PT Neurology Associates. Central California Neuroscience Institute
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IMAGE
Speakers and topics included:
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J.Douglas Miles, MD, PhD, Neuromuscular Specialist, The Queen's Medical Center
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Katherine
Krammer, MS, CCC-SLP, RN, Speech Language Pathologist, The Queen’s Medical Center
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Julie
Seman, PT and Wendy Tsutsui, OT, The Queen’s Medical Center
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Fred Fisher, MSW, LCSW, President &
CEO, The ALS Association
Golden West Chapter
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IMAGE
Speakers and topics included:
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Catherine Lomen-Hoerth, MD, PhD, Director, The ALS Center at UCSF
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Ilyssa Abaranok, M.S. CCC-SLP, AAC Specialist, The ALS Association Golden West Chapter
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David Beals, ATP and Brett Zaer, ATP, Superior Mobility
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Lucie Bruijn, PhD, Chief Scientist, The ALS Association
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Robert H Baloh, MD, PhD, Director, Cedars-Sinai ALS Center
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Don W. Cleveland, PhD, Departmental Chair of Cellular and Molecular Medicine, UCSD
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Clive Svendsen, PhD, Director, Cedars-Sinai RMI
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Speakers and topics included:
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Discussion about Familial ALS (fALS) Greg Merfeld, advocate and
person with fALS Steve Gibson,
Chief Public
Policy Officer, The ALS Association
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The Role of the Protein TDP43 in
ALS Robert H Baloh, MD, PhD, Director, Cedars-Sinai ALS Center
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Updates on the TREAT ALS Program Lucie Bruijn, PhD Chief Scientist, The ALS Association
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ISIS Study Update Richard Smith, PhD Director, Center for
Neurologic Study
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Winner of the Prize4Life ALS Biomarker Challenge Seward Rutkove, PhD Chief of
the
Division of Neuromuscular Disease, Beth Israel Deaconess Medical Center
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