ALS Ice Bucket Challenge Progress
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Download the PDF version here.

The Golden West Chapter of The ALS Association is dedicated to providing people with ALS and their loved ones with compassionate and professional care services, free-of-charge, made possible by your support. We offer critically-needed information, support, and resources which are proven to increase longevity, enhance quality of life, and help with the daily challenges of living with ALS.


 

More than 1800 people with ALS served by the Golden West Chapter in 31 counties throughout California and the entire state of Hawaii.

446 people newly diagnosed with ALS connected with the Chapter, representing more than one new family for every day of the year, and gained access to our world-class wraparound model of care.

The number of families facing ALS that are seeking Golden West Chapter services continues to grow every year. In some regions, we are serving nearly 100% of the predicted ALS population.

Our new “ASK ME” educational webinars were viewed more than 2,420 times through live broadcasts and on-demand via our social media channels.

13,600+ people viewed our Chapter’s care services webpages or downloaded/ordered new educational materials, resource guides, and information packets.

Launched new programming for targeted audiences, including for youth/teens and for caregivers, to address underserved segments of the ALS community and meet the needs of families facing the disease.

 

Collaborated with our 27 ALS clinic partners, including Certified Treatment Centers of Excellence and Recognized Treatment Centers, to seamlessly provide quality multidisciplinary care via telehealth platforms.

Created new online support groups for specific populations including Spanish language speakers, those interested in trach/ventilator topics, those diagnosed with familial ALS, veterans, and people seeking to develop mindfulness practices.


228 military personnel and veterans with ALS, as well as their families, received access to vital care services and support offered by the Golden West Chapter.


More than 38,710 engagements between families facing ALS and Golden West Chapter staff which represents a 39% increase from 2019.



Offered 548 grants to people with ALS for durable medical/communication equipment needs, transportation support, and respite care.



The Golden West Chapter held more than 260 online support groups with more than 2,085 attendees.