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Serving Hawaii’s ALS Community

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Everything we do at the Golden West Chapter advances the search for effective treatments and cures for ALS. The Chapter provides comprehensive and compassionate care services, free-of-charge, to people living with ALS and their loved ones on all of the islands in Hawaii. See some of the recent successes that were made possible by your support and learn more about what is happening in our community this year

 

About the Golden West Chapter in Hawaii

Our world-class wraparound model of care includes: professional care management services, multidisciplinary ALS clinical care, monthly support groups and educational programs, loans of durable medical equipment and augmentative communication devices, and opportunities to participate in community outreach, advocacy, and awareness activities.

Our Golden West Chapter's Care Management and Community Outreach staff are available to help and support our ALS community throughout the Hawaiian islands:

 


 


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AnnMarie Ingham

Assistant Director of
Community Outreach
aingham@alsagoldenwest.org
808-480-9689

         


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Rex Like

Regional Care Manager
rlike@alsagoldenwest.org
808-219-9036

         


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Mc Hoover (Mac) Negre

Equipment Program Assistant
mnegre@alsageldenwest.org
808-394-7642

 

Golden West Chapter - In the News

Visit the In the News section of our website, which serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS and other important updates about the ALS community and the Golden West Chapter.

Be sure to register to receive our monthly enewsletter and receive news updates and other highlights from the Golden West Chapter of The ALS Association. You can also subscribe to our many social media channels and networks.

For any media inquiries, please contact us at media@alsagoldenwest.org or call our media hotline 415-967-2572.


Spotlight on: Hawaii's ALS Community

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Mahalo and congratulations to Honolulu's Jeff Conway of team 808 ALS Vets for being the #1 Walk to Defeat ALS fundraiser throughout the entire Golden West Chapter in 2021!  We admire and applaud Jeff's commitment, while living with ALS, to help others now and in the future to BEAT ALS. Jeff and his team are committed to raising ALS awareness, especially for military veterans, who are at greater risk of being diagnosed with ALS in comparison to someone with no history of military service. Jeff also has participated in many different ALS awareness efforts, including media interviews and corporate educational events. He has participated for many years in Chapter ALS advocacy events and serves as an advisory trustee.

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Meet Jose Fajardo, President and General Manager of Hawaii Public Radio who has been living with ALS since 2019. Jose is committed to advocating for the ALS community and to raising ALS awareness. Here are some highlights of his story in his own words: “This is not something that people want to do. But I have a unique opportunity really to advocate for this disease, for treatment, and for science for ALS." “If someone can say ‘I now know somebody that has ALS,’ because they know me, then that will maybe provide them the impetus to go learn more about the disease, advocate for it, perhaps contribute to help find cures for ALS.” 

Read more about Jose’s story here.

 

The 2020 Virtual Hawaii Walk to Defeat ALS remembered Mary Patterson through the ‘Ohana Award this year. Mary and her husband John courageously battled her disease side by side and managed to still find joy along the way. Read our special Spotlight article and learn how Mary used her life to lift up others, and how John is continuing to fight ALS with the light Mary brought him.

 



 

 Help Us Unlock ALS In Hawaii - Saturday, September 17, 2022

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We are very excited to announce that we will gather to celebrate the 2022 Golden West Chapter Walk to Defeat ALS IN PERSON once again! Hawaii’s annual Walk to Defeat ALS will take place Saturday, September 17, 2022. Fundraising through the Walk drives bold and urgent innovation as we march together toward a treatment and ultimately a cure for ALS. Visit Hawaii’s Walk Page to sign up and get involved.

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We invite you to take part in our many upcoming online support groups and virtual events:

 

 Please check back often as more activities are added to our calendar! Mahalo nui loa for your continued support of people living with ALS and their loved ones in Hawaii. It is only together that we will defeat ALS!