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May is ALS Awareness Month. This month, we focus on inspiring hope and connection, raising awareness about the unique challenges facing the ALS community, and generating critically-needed support for our essential Chapter care services.

For the next 31 days, we will highlight key issues that are important to families facing ALS as well as share facts about the disease, promising scientific developments in the search for effective treatments and cures for ALS, and public policy initiatives designed to advance research and benefit people living with ALS and their caregivers.

This week, congressional ALS champions are introducing resolutions in the House and Senate to formally recognize May as ALS Awareness Month. This designation in Congress will raise critical awareness about the symptoms, potential risk factors, and challenges faced by the ALS community. This has the potential to improve the lives of people living with ALS through increased research funding, accelerating clinical diagnosis, and expanding access to critical services, benefits, and supportive programs.

People living with ALS are counting on all of us. We are in this together and here are some ways that you can help!

  • Take action: Ask your congressional representatives to support people living with ALS by passing the May as ALS Awareness Month resolution through our online advocacy center.

  • Make a gift: Your donation of any size will allow us to continue to provide vital Chapter programs and services free-of-charge, as well as fund ALS research and advocacy efforts.

  • Show your support: Change your profile picture on Facebook and Twitter by generating a special profile picture to show support for ALS Awareness Month. First you use "Twibbon" to create a special profile picture to show support for ALS Awareness Month. Then, you download it, and use it to replace your current profile photo on FB, Twitter, and Instagram! Also, use this Instagram story template to let people know that you are united with the ALS community. 

  • Recruit others: Encourage your friends to like and follow us on Facebook, Twitter, and Instagram and use the hashtag #ALSInThisTogether.

  • Share your story: A critical part of raising awareness comes from learning more about how ALS has impacted your life and the people you love.

  • Get involved: Sign up for or make a gift to one of our many Community Outreach Walks and Rides to Defeat ALS events.

ALS doesn’t stop, and neither do we. While we may be apart at this time, now and always, families living with ALS need to know that they are not alone. We are grateful for your steadfast commitment to our mission and vision.  Your ongoing support gives help and hope to the ALS community.

Thank you for your ongoing support. It is only together that we will defeat ALS!


 

 

Throughout May: Social media tools for you to use!

Start raising awareness and support today by changing your profile picture on Facebook and Twitter. You can generate a special profile picture using our special ALS Awarness Month profile frame through Twibbon. First you use "Twibbon" to create a special profile picture to show support for ALS Awareness Month. Then, you download it, and use it to replace your current profile photo on FB, Twitter, and Instagram! You can also use this Instagram story template to let people know that you are united with the ALS community and support the mission and vision of The ALS Association Golden West Chapter.

 

 

 

Saturday, May 16: Youth Action Day

Join us for Youth Action Day 2020!

Participate in ALS Youth Action Day by getting your kids involved in the fight against ALS. Help your child make a video or photo doing one of our Youth Action Day activities and share them online to help raise funds and awareness. Connect your child’s ALS Youth Challenge to your Walk to Defeat ALS or Ride to Defeat ALS efforts, or set it up as a standalone fundraiser via our One Dollar Difference platform. The ALS Youth Challenge can empower youth directly affected by ALS as well as recruit others into the fight. Take action and help spread support for Youth Action Day!

 

 

 

Sunday, May 17: The Virtual SoCal Ride to Defeat ALS

Join us for 2020 Virtual SoCal Ride to Defeat ALS!

The SoCal Ride to Defeat ALS & Trail Run/Park Walk has gone VIRTUAL! Honor the ALS community any time, any way, during event day. Post a photo or video of you riding your bike or taking a walk around the neighborhood...at a safe distance, of course! Be sure to tag #SoCalRidetoDefeatALS and @alsagoldenwest when you post. THANK YOU for your support of the ALS community, who need us now and always.

 

 

 

Sunday, May 18: "How ALS Research Advances During COVID-19 Pandemic"

Join us for our ASK ME webinar with Steven Finkbeiner!!

We invite you to our ASK ME educational webinar featuring Steven Finkbeiner, MD, PhD, Director, Center for Systems and Therapeutics & Taube/Koret Center for Neurodegenerative Disease, at the Gladstone Institutes. Dr. Finkbeiner serves as a professor in the Departments of Neurology and Physiology University of California, San Francisco. He also a dedicated member of the California ALS Research Network and the 2018 Essey Award winner for his “Commitment to a Cure”.

 

 

 

 May 26 - June 3: 2020 National ALS Virtual Advocacy Conference

The nation's largest gathering of ALS advocates is going virtual! During the 2020 National ALS Virtual Advocacy Conference, attendees will learn about the latest in ALS research, care services and advocacy, leading up to a virtual day of action. Together, we can continue to fight ALS by educating policymakers, driving action to increase funding for research, accelerating the search for treatments, and improving access to care.

 

 

 

ALL MONTH LONG: Help support our ALS community!

COVID-19 is creating new medical and public health challenges, causing economic uncertainty, and impacting vulnerable populations, like people living with ALS and their families. Learn more about our Chapter’s response to COVID10 and please help us continue to meet the needs of our ALS community. 100% of your donation will support people with ALS and their families impacted by COVID-19.