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NEWS RELEASE    
Contact: Jenica Lancy
Director of Communications

(415) 967-2572 (ALSA)

media@alsagoldenwest.org

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Community invited to the 15th Annual Napa Valley Ride to Defeat ALS on

Saturday, September 21, 2019 to support the search for effective treatments and cures for ALS.


09/13/2019–Napa, CA


The ALS Association Golden West Chapter proudly announces the 15th Annual Napa Valley Ride to Defeat ALS and Walk® on Saturday, September 21, at Justin Siena High School in Napa, CA. This is the largest of the Ride to Defeat ALS event series in the country and brings incredible energy and an outpouring of support for those affected by ALS who are served by the Golden West Chapter. Participants are invited to join other members of the community for a family-friendly morning of celebration, exercise, education, awareness, music, food, and family fun.

Registration opens at 5:45 am, followed by staggered start times at 6:30 am for the 100-mile route, 7:30 am  for the 62-mile routes, 8:00 am for the 47-mile route, 9:30 am for the 28-mile route, 10:30 am for the 9-mile route, and 11:00 am for the walk. Every participant can count on support from start to finish with rest stops, SAG (support and gear) vehicles, route monitors, and CHP presence. Upon completing the ride or walk, participants are welcomed back by cheering crowds and finish line festivities that include a live band (Lucky Drive), a delicious BBQ lunch from Tony Caters, beer provided by Lagunitas, wine provided by Trinchero Family Estates, and more! This special community event is open to the public, and all funds raised support the interdependent mission priorities of The ALS Association Golden West Chapter in care services, public policy, and research.

Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is a fatal, neurodegenerative disease that attacks nerve cells in the brain and spinal cord.  ALS is not contagious and does not discriminate – it affects men and women of all ages, ethnic backgrounds, and socioeconomic communities around the world. For unknown reasons, those who have served in the military are diagnosed with ALS nearly twice as often as the general population.  People with ALS lose their ability to move, speak, swallow, and eventually the ability to breathe, while all five senses typically continue to function normally. The average life expectancy of a person with ALS is two to five years from diagnosis. Currently, there are only two drugs approved by the U.S. Food and Drug Administration (FDA) to treat ALS, which only extend life by a few months.  At this time, there is no known cure.

Since its inception in 2005, the Napa Valley Ride to Defeat ALS and Walk has been a yearly opportunity for the ALS community to gather in a show of support and unity, and fuel the search for effective treatments and cures for ALS.  This year’s event is sponsored by Field Construction, Looker, The Guzzardo Partnership, Pricewaterhouse Coopers, Commercial Casework Inc, Syar Foundation, Hathaway Dinwiddie, Able Services, Romak Ironworks, and IBEW 617.

“The funds we raise from the Ride to Defeat ALS will allow The ALS Association Golden West Chapter to continue to serve the highest number of people with ALS and their families, which is more than 1,900 this year,” said Miles McConnell Co-Chair of the Napa Valley Ride to Defeat ALS and Walk, who has been living with ALS since 2015.

“We are so grateful for the ongoing commitment of our supporters and volunteers, who together have raised $8.2 million dollars since 2005,” shared Cliff Whitlock, Director of Team Challenge ALS. “Over the past 15 years, the Golden West Chapter has increased the number of families facing ALS that we are able to serve by 200%, as well as grown the number of multidisciplinary ALS clinics and centers that we fund by 50%.”

Participants can register for the event the morning-of for $150 to ride, plus a $150 fundraising minimum requirement, or $45 for the walk. For more information or make a gift in support, please visit www.NapaValleyRide.org. For questions about this event, please contact ride@ridetodefeatals.org. For media inquiries, please contact Jenica Lancy, Director of Marketing and Communications.

About the ALS Association Golden West Chapter:

The mission of The ALS Association is to discover treatments and cures for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Our vision is to create a world without ALS. The Golden West Chapter serves people with ALS and their families in 31 counties throughout California and in the state of Hawaii. Everything we do advances the search for effective treatments and cures for ALS. For more information about The ALS Association Golden West Chapter, please visit us at www.alsagoldenwest.org or email us at info@alsagoldenwest.org

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