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Golden West Chapter - In the News

Be sure to register to receive our monthly enewsletter and receive news updates and other highlights from the Golden West Chapter of The ALS Association. You can also subscribe to our many social media channels and networks.

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For any media inquiries, please contact us at or call our media hotline 415-967-2572.



  • In celebration of the upcoming Dwight Clark Day, the San Francisco 49ers shared a video of “The Catch,” narrated by Hall of Fame sportscaster and ALS Advocate, Vin Scully, who died on Tuesday, August 2, 2022. Scully is most commonly known as an MLB broadcaster for the Los Angeles Dodgers for 67 years. In 2021, Scully lost his wife to ALS.

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  • The Golden West Chapter hosts its inaugural Central Coast Ride and Rally to Defeat ALS on Saturday, September 17, 2022 at Bang the Drum Brewery in San Luis Obispo. The chapter is launching this new event in the Central Coast to increase awareness and support to those living with the disease, their families, and caregivers. We are grateful to our families in the Central Coast who have traveled to other Team Challenge events throughout our service area in recent years. 

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  • August 7, also known as “87 Day” is the annual remembrance honoring 49ers legend, Dwight Clark, who died of ALS in 2018. This honorary day helps raise awareness for individuals diagnosed with ALS and their families. As part of the event, the team will host the Golden West Chapter and Augie's Quest as honorary guests.

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  • We thank Leo Snyder, United States Navy Veteran and person living with ALS, for sharing his inspiring story about his experience with ALS and why he chooses to get involved with the Golden West Chapter’s community outreach events.

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  • We thank Laura Miller for sharing her inspiring story about how the Golden West Chapter’s services have excelled in helping access what is needed to make her life easier living with ALS.

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  • Cytokinetics and The ALS Association announced a new release of the Pooled Resource Open-Access ALS Clinical Trials (PRO-ACT) database, now updated with new clinical data from Cytokinetics’ completed clinical trials in ALS including, BENEFIT-ALS, VITALITY-ALS, and FORTITUDE-ALS.

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FDA Shares Plan for ALS, Other Neurodegenerative Diseases
July 1, 2022

Mitsubishi Tanabe Pharma America Announces Long-Term Findings from Post-Marketing Safety Study of RADICAVA® (edaravone)
June 29, 2022

San Francisco Giants Partners with ALS Organizations for the 2nd Annual Lou Gehrig Day
June 9, 2022

New 12-Month Tofersen Data Presented at ENCALS Meeting Show Clinically Meaningful Benefit in People With SOD1-ALS
June 3, 2022

PREVIOUS HEADLINES (through 06/02/2022)

Cyborg throws 1st Pitch for the Dodgers on Lou Gehrig’s Day
June 2, 2022

MLB & Dodgers Celebrating 2nd Annual Lou Gehrig Day
June 2, 2022

Second Annual Lou Gehrig Day on June 2nd
June 1, 2022

Previewing Lou Gehrig Day
June 1, 2022

Elex Michaelson of Fox 11 News for winning the “Golden Mic” Award
May 21, 2022

Cytokinetics and the ALS Association Renew Partnership to Advance the Fight Against ALS
May 18, 2022

Ken Paves: My Mother Was My Everything
May 8, 2022

Spotlight on...Lynn Giovannelli, Susanne Miller, and Melissa Stephens - Sisters, Mothers, and Champions for the ALS community
May 5, 2022

San Francisco's Women Artists Gallery seeks to inspire the community to participate, advocate, and donate throughout May's ALS Awareness Month
April 19, 2022

Spotlight on… Mari Winsor and Kristi Cooper: History-makers, Trailblazers, Powerhouses, and Storytellers
March 31, 2022

Spotlight on…. Marsha Maytum, FAIA, LEED AP: A Leader through Design, Social Justice and ALS Advocacy
March 31, 2022

Spotlight on … Eugenia “Jane” Shvartsman Student Event Chair, Jim Tracy 5k to Defeat ALS
March 24, 2022

Six Drug Development Projects Awarded Nearly $3 Million By ALS Association
March 21, 2022

Emerge Law Group: Four Organizations Dedicated to Disability and Patient Rights Join in the Fight for Terminally Ill Californians with Physical Disabilities
March 4, 2022

A message from Miles McConnell: Cherish Every Moment with Those You Love
February 28, 2022

STAT:Scientists Take Key Step Toward Unraveling the Genetic Roots of ALS in a Pair of Studies
February 23, 2022

ALS News Today: FDA, Amylyx Meeting to Review AMX0035 for Possible Approval
February 21, 2022

A message from Trish Rice: Cherish every day and #VoiceYour Love in honor of those impacted by ALS!
February 26, 2022

The Mercury News: High School Football: Five Takeaways from 47th Wedemeyer Classic
February 7, 2022

Neurology Today: Black Patients with ALS Face Significant Diagnostic Delays, Large Study Confirms
February 4, 2022

Patch: Los Gatos To Host Annual Charlie Wedemeyer All-Star Football Game
February 1, 2022

NPR: Progressive Activist Ady Barkan Says His ALS Has Increased His Platform
January 30, 2022

AP News: Universal Health Care Bill Advances in California Assembly
January 11, 2022

Polynesian Football Hall of Fame: Charlie Wedemeyer - Polynesian Football Hall of Fame Enshrinement Video
January 28, 2022

For other news and articles from last year, please visit our archives.