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The ALS Association Golden West Chapter Receives a $30,000 Quality of Life Grant from Christopher & Dana Reeve Foundation for ALS Respite Care

(March 5, 2021) – The ALS Association Golden West Chapter is proud to announce that it has been awarded a High Impact Priority Quality of Life grant in the amount of $30,000.00 from the Christopher & Dana Reeve Foundation National Paralysis Resource Center (PRC). Fourteen grants totaling $477,644 were awarded. The Quality of Life Grants Program supports nonprofit organizations that empower individuals living with paralysis. Since the Quality of Life Grants Program’s inception, more than 3,300 grants totaling over $32 million have been awarded. Funding for this new cycle of grants was made possible through a cooperative agreement with the Administration for Community Living (ACL grant #90PRRC0002-03-00).

The Reeve Foundation National Paralysis Resource Center has several grants under the Quality of Life program awarding grants in different category areas, varying in different amounts. The High Impact Priority Quality of Life grants program funds one-year grants with three increasing levels of grant funding: Transportation, Respite and Caregiving and Disaster Preparedness (Up to $30,000), Nursing Home Transition (Up to $40,000), and Employment (Up to $50,000). Each tier is targeted to focus on a High Priority issue to increase access to services and increase the independence or inclusion of people living with paralysis, their family members, and caregivers.

The Golden West Chapter will use the grant to support respite care for 40 families living with ALS throughout the Chapter’s service area, which includes 31 counties throughout California and the entire state of Hawaii. Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is a fatal, neurodegenerative illness that affects nerve cells in the brain and the spinal cord.

"On behalf of the families facing ALS who we serve, we are grateful to the Christopher & Dana Reeve Foundation for their generous support of our essential programs,” said Fred Fisher, President and CEO, of the Golden West Chapter. “Caregiving for someone with ALS is often a round-the-clock job. Caregivers must learn how to provide assistance for physical limitations affecting mobility, swallowing, speaking and breathing. Cognitive issues can present an extra layer of difficulty in providing care. These challenges can arise any time of the day or night. This important funding will allow us to improve the quality of life for those who care for people with ALS by providing them time to meet their own needs.”

“This past year has brought about many extreme challenges to the organizations that we work with and the people we collectively serve,” said Mark Bogosian, Director, Quality of Life Grants Program, Christopher & Dana Reeve Foundation. “This cohort of grantees and their ever-Important projects are a beacon of light as we navigate our way through a new year. There are still challenges ahead, but I know that together we will continue to move forward to overcome obstacles and barriers that affect the over 5.3 million Americans living with paralysis and their families and caregivers. I have complete confidence that these new projects will lead the way to a better tomorrow.”

Christopher & Dana Reeve Foundation